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Posted by CFMBabs , 07 October 2006 · 872 views

You have Raynauds, said my doctor. I must have been nineteen
A very common condition, many people with that I've seen
It's nothing for you to worry about, it may even go away
And with that diagnosis, I was sent on my way
My friends thought I was amazing I could make my fingers white
And they almost looked illuminous when we went out at night
I laughed with all the others but really deep inside
The pain was just unbearable and that I had to hide
First it started with two fingers then three, and then all four
Then it moved to my other hand and began to effect some more
I couldn't do my job, couldn't open doors with handles
My fingers dead as door nails and they looked like little white candles

The years went by so quickly and they kept getting worse
I hated having blood tests and going to the nurse
You see I had a problem and I didn't know what to do
My fingers they were bending and always turning blue
I started getting ailments, every day was something new
I even had pneumonia and eating problems too
I knew that things could not be right, by then I was 39
I never had a single day that I could say "I'm fine"

Finally, someone who cared and made me feel at ease
A young doctor had an interest in a very rare disease
I think you have scleroderma and that's why you feel so ill
I'd never heard of such a word, but I listened to him still
I'll refer you to a specialist and he will take a test
And now they say is history and my mind is at rest
I do have scleroderma and that ###### Raynauds too
And I'm so glad that I met him and the condition he knew
For years I spent in the wilderness, all the times it drove me mad
I walked around with a condition, one I never knew I had

My life has changed oh yes indeed, but not always for the worse
I still have my life to live with or without this curse
I take each day as it comes. look forward to the next
And see that scleroderma is nothing but written text
For life is how you make it and it's very plain to see
That maybe I have sclero, but sclero ain't got me
I'll fight every little problem and put it down to rest
And do the things I really like, things that suit me best
So if you're scared and all alone, remember I was there
I felt the world against me with friends who didn't care
But now that's all behind me and I don't give a toss
If you don't like me when I'm ill, your friendship is no loss

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