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Did you know that exercise increases inflammation in systemic sclerosis?






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A typical check up

Posted by barefut , 14 October 2008 · 662 views

Barb, your 3 month checkups sound kind of like mine. A two and a half hour minimum, one way travel time, crossing 2 bodies of water, one by floating bridge that is usually open to submarine traffic every time I cross it and I must wait at least 1/2 hour. The other body of water crossed by ferry usually during commuter time. Then a treacherous hill climb through downtown traffic and dodging pedestrians running to beat the light. Finally to the top of the hill and into the parking garage. No sense even looking for a space until I get to the top floor. Then a 6 story descent by foot down the stairs to street level.

Once inside, a wait in line to check in, then the elevator to the 5th floor where I cross a skybridge to the next building and go up the elevator to the 6th floor. Around the corner and a life size cardboard cutout of Luke Skywalker dressed in real scrubs greets me at the reception desk. Seeing my childhood crush waiting for me at the end of my long journey is totally worth it all. :D The gals at the desk promised me I could have him. They even offered to carry him down to my car for me. But he belonged to their boss and she wasn't there that day, so I was a little hesitant about taking him. Upon my next visit he was gone. :(

Then yea, a 5 minute face to face with rheumatologist and it's all the way back home and all at a cost of about $120 for gas, ferry, parking and at least one meal on the road, not to mention missing work. So, I talked my rheumatologist into seeing me every 6 months as long as I was feeling the same. I can get my bloodwork done locally and they'll fax results to her. When I see my pulmonologist and have my PFT every 6 months, I see my rheumatologist too. The clinics have been great at scheduling my appointments all within an hour of each other.

As far as complaints or questions to ask, I really don't have much to say anymore either. "Uhhh......I got nuthin' - wanna look at my toe?" So at last visit I showed her my painful pinky toe with the brownsih toenail (which I have concluded is a stubborn fungal infection not gangrene). She said, sometimes people just have it cut off. Knowing what she meant I teasingly said, "The toe?!" :o to which she replied, "No, the nail." <_< I think she thought I was serious. Now she thinks I'm a nut case. I was concerned about the healing process with Raynaud's and all but since she didn't seem at all concerned, I think I will have it cut off - sick of dealing with it.

What a lovely discussion! :P




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