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Complaining

Posted by barefut , 13 April 2010 · 1,479 views

I didn't think it was possible at this point but I think my mouth is actually getting even smaller. And my face is itching like mad! The cobwebby feelings are back and driving me nuts! Chewing is fatiguing on my jaw. Eating a granola bar is a total workout! Forget about gum. My jaw and neck and shoulders are so tight I have had a tension headache for a week. Sleep? What is sleep?

A spot on my left thumb itched so badly yesterday that I made and popped a blister by rubbing it and I didn't even realize it.

My feet cramp up all the time and after an hour of grocery shopping, my heels feel so tender and bruised I can barely walk.

My right rotator cuff is messed up pretty good and I can't raise my right arm so I can't put on a bra or brush my hair, and brushing my teeth left handed has left a lot to be desired in the oral hygiene department.

So here I am, a small mouthed, itchy faced, sore thumbed, crabby, sleep deprived, hobbling, braless, bedhead with bad breath. I just want to hibernate. :emoticon-bang-head:




Oh my ######....I just looked at your last "update" (haven't been in here in awhile...) and thought things were looking up and then I read this....man, what is with this disease anyway. We didn't sign up for all this! I'm having big trouble with my right leg. Seeing the doctor tomorrow. Even my percoset isn't touching the pain.
I've noticed the mouth thing too.....sigh....I sort of liked my big mouth the way it was. I don't have the itchy skin thank goodness.
Anyway, know that you are not alone....thinking of you :emoticon-hug:
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I also have this desease. it is killing me, my arms and sides are so tight and hard and so very itchy, I wake up in the mornings with all sores from scratching during the night, I can barely swollow any more without choking, I have had two operations on my feet 3 months ago and the right foot won't healn now my hips are involved, I am housebound as I cannot walk due to the muscles in my legs are so tight and I have had cortizone injection into my hips for the pain, but I am alive and so very glad I can chat to other people about it :girly1-by-lisa-volz:
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Amanda Thorpe
May 12 2010 10:48 AM
I feel the foot pain...literally! I'm into my 3rd year and still have foot pain, isn't it supposed to get better? Today I saw a photo of me pre sclero...I miss my full lips! I really hope things get better for you soon :emoticon-hug: !

Take care.
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What is wrong with your feet, please tell me I would like to know if it is the same, my
lips are also a lot smaller and the sides are always cracking, I am going to see the
doctor this afternoon about my foot not healing, I don't know what he is going to
do and I am having another injection into my left hip.

We are not alone


:thank-you:
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What is wrong with your feet, please tell me I would like to know if it is the same, my
lips are also a lot smaller and the sides are always cracking, I am going to see the
doctor this afternoon about my foot not healing, I don't know what he is going to
do and I am having another injection into my left hip.

We are not alone


:thank-you:
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Hi Dianehd,

I saw my doctor 2 weeks ago and she told me my feet problems are tendonitis.

I am so sorry you are having to deal with all of that! I'll bet those cortisone injections for your hip help a lot as the one I had in my shoulder was wonderful.

You take care!
Thanks for your comments to my blog.
Stay Healthy, Happy, Safe and Warm!
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