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Community Status Updates



hey! thx for letting me know. I absolutely will ask. I do not have a single symptom of the disease... the positive blood test was a total shock to me and my rheumatologist. I have found others here like us, too. My current rheumatologist feels a 10% chance of ever getting it, and also it would be mild if we did because we are pos. yet no symptoms. My heart and lungs are normal and naillfolds normal too.
Oct 04 2010 06:44 AM

ladybug → SuzanneL

I too had a positive SCL-70 reading over 2 years ago. I developed ritis and my doctor did blood tests. My ANA was up and my SCL-70 was 233. after more tests by a rheumatologist, he said I did not have Scleroderma and probably never would get it. Still scares the **** out of me. Please ask doctors at Hopkins why so many of us have this marker but not the disease? Will we get it?...
Oct 04 2010 06:23 AM

Patty Arche-Hueck → sandra

Sandra,i saw your pics and I have the red patches on my face too ,my dr has not see then yet; i have appointment on oct 25,what do you use for that? please I am new to this help me
Sep 27 2010 07:35 AM

NorthStarHope → Sandy B

Sep 20 2010 11:49 AM


I have mixed connective tissue disease.
Sep 19 2010 11:32 AM


Hello all,My name is Judith, 54 years old. I just registered today, live in Lincoln area. Have had scleroderma for 5 years.Just saying "hello" to you all.
Sep 17 2010 10:22 AM

Patty Arche-Hueck → hardskinsoftheart

welcome to the group I am also new and learning,Patty
Sep 17 2010 06:52 AM

Patty Arche-Hueck

Thanks to everyone that respond to me,i really appreciated!!!!!
Sep 17 2010 06:29 AM

Patty Arche-Hueck

A FRIEND doubles the joy, and halves the grief
Sep 15 2010 04:13 PM


After suffering from chilblains and what I now know must have been Primary Raynauds as a child, I was eventually diagnosed with Limited Scleroderma in 1997. GI reflux,anaemia,digital ulcers/calcinosis and bowel problems followed and some damage to my lungs at the last check-up at the Royal Free Hospital,London. Digital ulcers now surfaced again; ideas on their management invited please. Warm hugs
Sep 05 2010 03:16 AM


Hi Annie20 I laughed when I had seen you sent me a message because it must have been esp I was thinking of you the last few weeks. I could not go to Dr. Mendoza because of insurance reasons, he would not have been covered. I saw Dr. Potts in Green Bay, he seemed very good. He did a high resolution cat scan, pul tests, sleep study pre test, all looked pretty good he said, Annie I will email you, OK
Aug 29 2010 01:53 AM

Annie20 → perfect

Hi Susie,
This is Annie20 and I'm hoping all is well with you.
I haven't seen you on chat for quite awhile and wondering if you're o.k.
Just curious if you set up an appointment to see Dr. Mendoza, the pulmonologist whom I recommended. And if you did see him, what was your opinion on him? I still see him and feel he is a very competant pulm., and...
Aug 28 2010 11:09 AM


Hello I am a mother, grandmother and great grandmother. I have had Scleroderma Morphea for 48yrs.
Jul 26 2010 10:05 AM


My name is Kaye and I am age 69, diagnosed with EF
Feb 2010. So glad I found this website as it makes one feel so not alone and there are others who know of what you speak. Look forward to hearing from you.
Jul 20 2010 09:25 AM


I am a 60 year old female and was deagnosed with CREST 8 years ago. In retrospect, I had symptoms 7 years before that. I was a dialysis nurse for 18 years but in January 2010 I retired because of health reasons. I'm now on medical disability. I live in Montana and love. I joined this forum because there are no sclero groups here, and I need some support.
Jul 07 2010 05:01 AM