Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!

Community Status Updates



I was born June 22,1050, so I'm 60 years old. I was diagnosed with CREST syndrome 8 years ago, but in retrospect I had symtoms 7 years before that. I was a dialysis nurse for 18 years but in January 2010 I quit because of health reasons. I'm now on medical disability. I live in Montana and love it. I joined this forum because there are no sclero groups here, and I need some support. So...
Jul 02 2010 08:22 AM


Hi there......
Jun 30 2010 02:06 AM


I am Kath and have Limited Scleroderma and Raynauds. I have been a member for some time now and my story had appeared in Voices of Scleroderma Volume 2 (page 68)of which I kindly received a copy, but this was whilst I was living in Spain and I returned to my home in Scotland to live in 2006. I misplaced my login details, so had to "join" again. My conditioned has not c...
Jun 09 2010 02:34 AM

Lynnie → rachel layer

the bath emolient is called OILATUM
the cream is called EPADERM cleanser/moisturiser both available on prescription or to buy oilatum is deffinitely ok hope it brings you some relief let me know ok Lynn x
May 31 2010 09:46 AM

Sheryl → Amanda Thorpe

Are they giving you any natural vitamins for your chronic fatigue? I was given CoEmzymeQ10 and some other natural vitamin and before I knew it I was doing well again. Also cut down on sweet things. Any types of sugary foods for awhile. You will be surprised how much less fatigue you have.
May 25 2010 11:07 AM

Vanessa → Deb1million

Cant believe it. I messed up right and proper and have been confined to barracks. I have just posted a note.
How are you doing?
Also I think you are on Cellcept. Have you found it ok as far as your blood levels are concerned and do you feel reasonably well on it?
Enjoy the sunshine
May 21 2010 11:19 PM

Deb1million → Vanessa

hi Vanessa
Just a quick note to wish you a great time on your cruise! Hope you get to see some wales and dolphins. Are you going up as far as the Northern Lights? It will be fantastic!
Have a great time!
May 20 2010 10:28 AM

Sheryl → susieq40

Susie I went to facebook and typed in the name you gave me. There were several people with your first and last name. Then I went to the other susie's and looked for your name or picture under her 155 friends and family. I didn't find you. So, you can send me the invite. SherylDoom is all you have to put in. There should be a picture that you are familiar with there. Good luck.
May 02 2010 03:29 PM

Vanessa → barefut

Hi there Barefut
I noticed that you are taking Cellcept. I started it in March but after a couple of weeks on 1000mg (2 tabs a day) was taken off as my white blod count dropped to 3.4. Yeaterday I started back on as my count went up to 4 after 2 weeks off.
Do you find t makes you very tired?
Also, have you found that it makes your skin more painful in a kind of "nerve pain...
Apr 20 2010 08:35 PM

shaz → Jeannie McClelland

sorry had to post one more, you are and in my life time will be the most inexhaustible
people I will have ever had the privilege to talk to ,when I think I have no more to give my farther in everything he dose reminds me that I do not no how lucky I am and ,i like him can reach new hights thank you love and admiration for your sthrengh and curagexxxxxxxxxxxxxx
Apr 20 2010 01:55 PM


he went to the shetland from there , then to the middle east
Apr 20 2010 11:19 AM


my farther has ssc plese anybody with this in the uk ,he started out at ici
Apr 20 2010 11:17 AM


anybody out there with ssc
Apr 20 2010 11:16 AM

Vanessa → Amanda Thorpe

Hi Amanda
I am pleased to read on the forum that you have had more energy.
Enjoy the sunshine.
Best wishes
Apr 20 2010 09:18 AM


Hi Everyone, I am stable with NO label!
Had a Scl-70 positive twice, but negative for two years. Taking Doxycycline Hyclate 20 bid.
Has help tremendously. They are finding that the Tetracycline drugs are great for all Autoimmune issues.
Apr 11 2010 03:16 PM