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Community Status Updates



Diagnosed: Ankylosing Spondylitis, Psoriatic Arthritis, Autoimmune Thyroid Disease, SLE, Sjogren's, with overlapping features of systemic sclerosis and CNS Lupus. The battle is 28 years long, and I swear I am winning.
Apr 03 2010 03:52 PM


I am contemplating a digital sympathectomy for the ones who have had this surgery done can you recomend a specialist for this?
Apr 03 2010 10:09 AM


Thank you for that. How long have you had the calcinosis? Has the channel blocker helped at all?
Mar 28 2010 09:59 AM

mammagigi → Mortisha

Hi Mortisha...
Sorry to hear your daughter has calcinosis...unfortunately I still haven't found much in the way of getting rid of it since mmy body seems to be ravished in it...like all over..hard rocks, soft nodules & even fluidy...I recently started on a calcium channel blocker...but also have heard of ultra sound treatment...they use it for calcinosis that is formed from injurie...
Mar 27 2010 06:22 PM

Mortisha → mammagigi

I need to ask is there anything u could do to remove the calcinosis My daughter has it in her bottom cheeks and at the back of her arms which as u would know is restricting.
thanks sandra
Mar 23 2010 11:08 PM


I live In the Great Northwest in a small town near Seattle,WA.
I worked in Healthcare since the mid 70's and still work as a HUC/NAC in Surgery now.
A few years ago I was diagnosed with Kidney Disease( only have 1 to start) and my Nephrologist was running several bloodtests to figure out what was damaging my kidney.
ANA and SCL-70 were both positive so here I am on t...
Mar 19 2010 06:26 AM


Hello everyone I am 47 year old women with Scleroderma I've had for about 6 years and only recently started Imuran and Prednisone,I am not one to take meds so I fought it as long as I could, mistake maybe but I will not give up to find another way than these toxic meds.
Mar 05 2010 03:29 AM


Wow, would not have guessed. How facinating. I bet that is fun and challenging. I imagine that it is quite time consuming, especially when they are babies like that. Thanks for letting me know. Gale
Mar 03 2010 01:49 PM

ladyhawke → agilitygirl

Glad you like my picture :o) No, I work with a wildlife centre and foster wildlife babies for them. This was a coyote puppy from a few years ago. They are adorable.....
Mar 03 2010 01:46 PM

agilitygirl → ladyhawke

What is great picture! Is that a puppy?
Mar 03 2010 01:07 PM


is learning something new every day.
Feb 28 2010 05:19 PM

Shelley Ensz → Eos

Just stopping by to say hello, EOS.
Warm Hugs,
Feb 22 2010 03:26 PM

Shelley Ensz → pduckworth

Hi PD,
The "set status" thing is just there in a useless attempt to drive all of us nuts, wondering what it is there for. It worries me actually. I don't know how to set a status, but if you find out, you could always set yours to "High". <LOL>
Feb 22 2010 03:25 PM


been a member for over 3 years- saying hello this evening very sick in 05-06 now
almost without symptoms I'm very blessed
Feb 09 2010 04:38 PM

Vanessa → Amanda Thorpe

Hi Amanda
Thanks for your advice on Monday I really appreciated it and it was comforting to know that I wasnt going to strangle myself like something from a Monty Python sketch!
Only one week to go till I get to Prof Denton and I am realyy looking forward to meeting him. He looks so approachable and kind and I dont feel a bit nervous about it.
I hope you are well.
Best w...
Jan 21 2010 06:28 AM