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Did you know that exercise increases inflammation in systemic sclerosis?


Community Status Updates


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Vanessa → Amanda Thorpe

Hi Amanda
Thank you so much to both you and Michael for making us so welcome yesterday.
It was lovely to meet you both and the rest of the crowd.
I will let you know about my get together here once I get my act together.
Vanessa
x
Jan 16 2010 08:17 PM
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Vanessa → Deb1million

Hi Deb
On my way back yesterday I realised that it was you!!!
So nice to meet you yesterday and get together with everyone.
Best wishes
Vanessa
Jan 16 2010 08:11 PM
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charlene21383

Hi im looking for people who live near havant in hampshire who is suffering like myself plz plz get in touch,would love to hear from ya.x
Jan 14 2010 10:47 AM
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charlene21383

Please feel free to mail me im new to this forum and havent spoken to people with scleroderma b4 and would love to hear from you.x
Jan 13 2010 11:00 AM
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Janelle

Hello, I am 54 years old and newly diagnosed with Scleroderma. It started 7 months ago with Raynauds one morning. It started every time I washed my hands and then I got a purple spot on my index finger which became an ulcer which turned to gangrene. I also have a smaller spot of gangrene on my second finger. They determined recently after many test it is Sclero. I don't know what to exp...
Jan 03 2010 02:02 PM
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pduckworth

what do I put in the line to have set status?
Dec 31 2009 07:06 PM
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pduckworth

Hi Everyone,
I've come to this site many times and decided it's time I become a member, I have found this site very helpful, especially the questions section. I hope to see a rheumatologist in the new year to get a better picture of my situation, and hopefully get some medications to allow me to function. Well, time will tell and of course just look around and you will always find someone...
Dec 27 2009 02:34 PM
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trishtrub

as broken up from work for the holidays, yipee xx
Dec 16 2009 05:32 AM
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annie b

this is all confusing to me - can't find where to post, sorry. I am a senior citizen- a studio artist, work with small metal sculpture.Am waiting for diagnosis under systemic sclerosis(progressive) the pain is disabling,in my lower legs, what to do? Blood work being done and biopsy, scared... Annie B
Dec 11 2009 05:42 AM
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Stacey

here again
Dec 06 2009 02:37 PM
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Honey

Thank you for your reply. I hope all is well for you and your friend. How long has she been taking it, and does she have her doctor's approval?
Nov 27 2009 04:39 AM
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freakingout → Honey

My friend takes LDN for Fibro. Helped her tremendously but was hard to adjust to at first.
Nov 26 2009 01:37 AM
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Deb1million → nancymuth52

hello Nancymuth
welcome to the best place for advice and encouragement on anything related to sclero. I have found it very helpful.
I liked a post you wrote on here, something like "we only get dealt what we can handle" and I think thats a brilliant way of coping when times are tough. When were you diagnosed? Read my profile if you want, and keep in touch. Take care.
Nov 25 2009 11:37 AM
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Vanessa → Deb1million

Hi Deb
I am doing ok- apart from my hands particularly the right one which is so swollen and solid it feels fit to burst.
Still waiting for an appointment date with Royal Free Hospital.
How are you doing?
Vanessa
Nov 24 2009 05:12 AM
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Deb1million → Vanessa

hello Vanessa
How are you getting since your diagnosis? This is certainly the place to be for practical advice and information on such a diverse condition.
Good luck, and keep in touch!
Debs
Nov 21 2009 08:16 AM