Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.

Community Status Updates


Patty Arche-Hueck → sandra

Sandra,i saw your pics and I have the red patches on my face too ,my dr has not see then yet; i have appointment on oct 25,what do you use for that? please I am new to this help me
Sep 27 2010 07:35 AM

sandra → janey

Oct 22 2009 02:10 AM

sandra → northendpoet

Hi Northendpoet, Sandra calling
You have watermelon stomach, me too!Remember playin in the school yard when we where young & healthy-who would have thought what our future held? Are they treating your stomach,or just monitoring/ Curious.. achey joints for me too!your my neighbor, just across peace arch border in BC.Now I sit on a Park bench, and watch them play.
You frien...
Oct 19 2009 02:19 AM

sandra → Kamlesh

Hello Kamlesh !
Great to meet you, I have Doctors interested in IV Iron also ,weekly, Are you still doing the IV? How did it go for you? I have a Malabsorption dilema, along with Sclero, I haver Watermelon stomach, How are you feelin these days, I am exhausted, did yoga help?
Best wishes, Sandra
Oct 19 2009 01:48 AM

sandra → hippychik

Hello Hippchik!
Came across your post, How are things going with you? Hope your comfy and coping...
Send us an Update - we care.
Oct 16 2009 03:03 AM

sandra → janey

Janey, luv the avitar!So peaceful,this must be your veiw? I wish I was there SIX days from now.. I would make you Grits & Greenies for breaky!
Phuphinita, Sandra
Oct 16 2009 02:36 AM

sandra → amberjolie

Hellooz Amberjolie
Sandra callin,I realized it was'nt you without freezing after I cliked "Post!" Woops, Today stitches come out, eyelids! The good thing about too many doctor appts,is "they still are trying to help,I wish all my appts could all be in one day! Instead of one a day!Wish I knew you sooner,we were there, we stayed in a haunted hotel-Icecream on Wo...
Oct 16 2009 02:14 AM

sandra → ozzy69

Hi, Sandra callin
Me too- wrists n ankles still a little bonus Diarea, seems weird being able to write these things to people who actually understand it, lucky to have you as a good buddy. Eyelid sutures removal this friday, hopefully results will be ready.I wonder what the damage is doin to our joints?? Are we going to end up gimped, hmm I will ask my Doctors- let ya know.
Oct 13 2009 04:26 AM

sandra → ozzy69

Ring Ring.. Hellooooo
Nina there?
Sandra callin, Just checking in to see how's the wrists and ankles, mine are still achey! Not likin it a bit! Still waking up at 1:30 - 2:30 am Really whats up with that? No wonder we drag our ourselves around like ZOMBIES all day, Just one full good nights sleep is all I ask! Nina I get my eyelid biopsie results this Friday and stitch...
Oct 12 2009 03:43 AM

sandra → Amanda Thorpe

Me too Amanda!
I don't look disabled, but when I go grocery shopping and hang the card on my mirror, every once in a while (usually seniors) come to my car angry "YOU DON'T LOOK DISABLED AND ITS AGAINST THE LAW TO USE YOUR GRANDMOTHERS CARD! They they scowel at me in the store, should I stand there & explain myself to them... Twisted inners Sandra
Oct 06 2009 02:42 AM

sandra → smac0719

Hi smac
Oct 05 2009 03:12 AM

sandra → smac0719

Part 2- In canada the Doctors did these tests but first had me drink to clean out all digestive areas of course they found nothing!Have test done while in Pain and NO clean out, they will see what the problem is.
I spent a 4 hr. plane trip the hole time locked in the bathroom!With people banging on the door..then hospitalized.
Good Luck, Sandra
Oct 04 2009 04:50 AM

sandra → smac0719

Smac,I have had bowel related extreme pain, ambulance to hospital and admitted several times,turn out after my trip to the USA to a scleroderma expert, I need a "Motility specialist" who could order an MRI and Ultra sound WHILE having the pain flare-up! Not after it settles- Findings are called "Pseudo Obsruction" In canada the Doctors OUT OF SPACE_SEE PART 2
Oct 04 2009 04:42 AM

sandra → craig.norman

Big hello & Welcome Craig!
Glad that you found us, I recently became a member too, I thought I was all alone with Scleroderma, until I joined all my new friends here, there is everything you would want to know or ask about auto-imune right here , support & caring people got me through my days, and some great laughs too!
Sincere Welcome
Oct 03 2009 04:10 AM

sandra → Elizabeth28

Ring Ring Hello Elizabeth, anybody home?
Sandra Calling,
I have been thinking of you lately, and read your last post, I am so thrilled for you that you have gained some peace and comfort with your health, Keep positive, stay comfy, and don't forget we are always here for you, keep in touch OK, Only good wishes for you Elizabeth! Your Friend Sandra
Oct 01 2009 01:50 AM