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Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Community Status Updates


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Vanessa → Deb1million

Cant believe it. I messed up right and proper and have been confined to barracks. I have just posted a note.
How are you doing?
Also I think you are on Cellcept. Have you found it ok as far as your blood levels are concerned and do you feel reasonably well on it?
Enjoy the sunshine
Vanessa
May 21 2010 11:19 PM
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Deb1million → Vanessa

hi Vanessa
Just a quick note to wish you a great time on your cruise! Hope you get to see some wales and dolphins. Are you going up as far as the Northern Lights? It will be fantastic!
Have a great time!
May 20 2010 10:28 AM
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Vanessa → barefut

Hi there Barefut
I noticed that you are taking Cellcept. I started it in March but after a couple of weeks on 1000mg (2 tabs a day) was taken off as my white blod count dropped to 3.4. Yeaterday I started back on as my count went up to 4 after 2 weeks off.
Do you find t makes you very tired?
Also, have you found that it makes your skin more painful in a kind of "nerve pain...
Apr 20 2010 08:35 PM
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Vanessa → Amanda Thorpe

Hi Amanda
I am pleased to read on the forum that you have had more energy.
Enjoy the sunshine.
Best wishes
Vanessa
Apr 20 2010 09:18 AM
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Vanessa → Amanda Thorpe

Hi Amanda
Thanks for your advice on Monday I really appreciated it and it was comforting to know that I wasnt going to strangle myself like something from a Monty Python sketch!
Only one week to go till I get to Prof Denton and I am realyy looking forward to meeting him. He looks so approachable and kind and I dont feel a bit nervous about it.
I hope you are well.
Best w...
Jan 21 2010 06:28 AM
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Vanessa → Amanda Thorpe

Hi Amanda
Thank you so much to both you and Michael for making us so welcome yesterday.
It was lovely to meet you both and the rest of the crowd.
I will let you know about my get together here once I get my act together.
Vanessa
x
Jan 16 2010 08:17 PM
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Vanessa → Deb1million

Hi Deb
On my way back yesterday I realised that it was you!!!
So nice to meet you yesterday and get together with everyone.
Best wishes
Vanessa
Jan 16 2010 08:11 PM
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Vanessa → Deb1million

Hi Deb
I am doing ok- apart from my hands particularly the right one which is so swollen and solid it feels fit to burst.
Still waiting for an appointment date with Royal Free Hospital.
How are you doing?
Vanessa
Nov 24 2009 05:12 AM
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Deb1million → Vanessa

hello Vanessa
How are you getting since your diagnosis? This is certainly the place to be for practical advice and information on such a diverse condition.
Good luck, and keep in touch!
Debs
Nov 21 2009 08:16 AM
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Vanessa → Deb1million

Blimey O'Reilly!!!
You have certainly got plenty going on, and you look great in your photo!
Sending you best wishes.
Vanessa
Nov 17 2009 02:28 AM