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I'm New To Group...but Have Had Sclero For 8+ Years

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#1 Karenpi



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Posted 08 February 2007 - 02:48 PM

Hi everyone! I have been reading your posts for quite some time but this is my first posting and I am happy that I have found this support group. I was diagnosed with scleroderma 8+ years ago. As with many of you, my primary challenges are fatigue, stiffness, shortness of breath (due to pulmonary fibrosis) and skin tightness. On the positive side I am retired and enjoying every minute I can, have an awesome partner who is my primary support system, have excellent physicians, and am optomistic about the future. I look forward to communicating with you and learning all I can about this disease and treatments that have worked for you...especially in the area of pulmonary fibrosis. Have a good day.

#2 Heidi


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Posted 08 February 2007 - 02:56 PM


Welcome to the forums. I am so glad you decided to join and post your first message. It is great to have you as one of the "family". I am just sorry it is because you have scleroderma and the pulmonary fibrosis that often goes with it. I am sure you will find everyone here very warm, supportive and encouraging.....and full of information and advice. So, make sure you ask questions as you have them. Hope we see many more posts from you.

Warm wishes,

#3 LisaBulman


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Posted 08 February 2007 - 03:52 PM

Hi Karen,
Welcome to the forums! I am so glad you finally decided to post here. We are very friendly and we don't bite..... unless you are holding some warm brownies or something. ;)

I have had sclero for 14 years and also have pulmonary fibrosis. Feel free to ask questions. I'll do my best to answer them.

Take care,
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#4 Sweet


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Posted 08 February 2007 - 04:04 PM


Welcome to the sclero forums. I'm so glad you have decided to post. I'm really sorry it's due to you having Sclero. Sounds like you have a great attitude however and a wonderful support system.

You will find an immense amount of information here, great support and good friends. I look forward to seeing more posts from you.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 emmie


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Posted 08 February 2007 - 06:00 PM


If you have the misfortune to have sclero, you have the good fortune to be here! I think it's the best for information, support, encouragement and even a laugh or two from time to time! Glad you found us.

xoxo emmie

#6 nan


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Posted 09 February 2007 - 03:39 AM

I am so sorry about your diagnosis, but you are in the right place for support! As of now I don't have any lung issues so I can't help you in that department.
Take care,