Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Hyperbaric treatments verse digital sympathectomy

  • Please log in to reply
5 replies to this topic

#1 misssunshine



  • Members
  • Pip
  • 3 posts

Posted 03 April 2010 - 11:09 AM

Has any one contemplating or had a digital sympathecomy ever thought of trying hyperbaric treatments? Many have suggested I try hyperbaric treatments first, but can it really work? From what I have gathered my veins need to be stripped of the the fiber/collogen whatever is binding the vein to restrict the blood flow, without that how can blood properly flow? and if there is a quote un quote plumbing issue can hyperbaric work?

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,263 posts
  • Location:Minnesota

Posted 03 April 2010 - 12:49 PM

Hi Miss Sunshine,

Welcome to Sclero Forums!

We have some info on hyperbaric treatments on our main site, along with many other treatments for digital ulcers. It is important to consider all your options with an experienced scleroderma expert.

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 bookworm


    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 04 April 2010 - 07:47 AM

Have you tried Viagra or Cialis to improve circulation in your fingers? Cialis works great for me. I haven't had a serious finger ulcer since I started taking it several years ago! I would certainly want to try all my options before having surgery -- but that's just me!

I do know someone whose doctor immediately took her off her Cialis because he had never heard of treating scleroderma with it. It had just healed a major ulcer for her and saved her from amputation! I guess it would have been too much trouble for the new doctor to look it up! My friend had just moved to a new city (a large city, at that) and this was a new doctor.

Whatever you decide, good luck.

Mary in Texas

#4 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 04 April 2010 - 09:13 AM

Hello Sunshine,

I have no experience with what you are discussing, but I wanted to welcome you! :flowers:
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 misssunshine



  • Topic Starter
  • Members
  • Pip
  • 3 posts

Posted 04 April 2010 - 10:07 AM

Thank you first off for your response :happy1-by-lisa-volz:. Yes, I have tried many vasodilators to no avail and the side effect were lets just say not pleasant. I have a very severe case of Raynaud's we're looking to the digital sympathectomy as a last option. The only thing that worked extremely well was infusions of Flolan or also commonly knows as Iloprost. But for that treatment I have to be hospitalized for days. So that is why I am looking at one last option hyperbaric treatments and was wondering if anyone else tried these treatments and what their outcome was.

#6 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,921 posts
  • Location:U.K.

Posted 04 April 2010 - 11:06 AM

Hello Misssunshine

I just wanted to say welcome to the forum!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)