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One Month Post Kidney Transplant


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#1 miocean

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Posted 08 April 2010 - 08:25 AM

It's hard to believe that a month has passed since I had my kidney transplant. I am feeling much better but my incision hasn't healed so there is no bending or lifting. Monday I have an appointment with the surgeon to check it out. I may need a few more stitches. I can start driving again. I am still in isolation for another month and starting to feel like doing things around here that I have been putting off but can't do them because of the restrictions. I am having problems with diarrhea so one of my anti-rejection medicines has been reduced and I have an appointment with the gastroenterologist on Wednesday. My prednisone has gone from 60 mg a day to 30 and will drop again next week. The goal is to get down to 5.

I had my dialysis catheter taken out last week. No more tubes hanging down my chest and I can take showers again and wash my hair under the water. What a luxury! I had my kidney stent removed Monday and was very nervous about it but it ended up to be nothing. It was over in a minute. I've had some but not all of my staples removed. So I am making progress. The problems I am encountering are minor, at least my body isn't rejecting the organ. It was very confusing organizing all my medications but I think I have it right now. There was major confusion at the hospital when new labs were added but that is also straightened out.

I still have scleroderma and the organ damage and secondary conditions that go along with it but I know the transplant will improve my quality of life.

miocean
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#2 Deb1million

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Posted 08 April 2010 - 09:03 AM

Great news miocean!

I'm so pleased to hear you are progressing so well. I hope the incision heals up soon.

Have you noticed that you have more energy now you are off dialysis? or did that keep you feeling ok? I'm asking because I have stage 3 kidney failure and may have to start dialysis in the future.

Weren't you allowed to get the catheter wet or take a shower when on dialysis? It sounds like you are enjoying it now.

Take good care of yourself

Debs

#3 Amanda Thorpe

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Posted 08 April 2010 - 09:04 AM

Way to go! We look forward to hearing you go from strenght to strength. It's amazing that transplants have only been around for 50 years or so and they're now so good at it that here you are just one month post transplant and you're making a strong recovery. :emoticons-yes:

Take care.
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#4 debonair susie

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Posted 08 April 2010 - 09:42 AM

Hi miocean,

It really IS hard to believe it's already been one month...WOW!

I also hope your incision clears up soon. If you DO need a couple of more sitiches, in order for it to heal well, then I'm pretty sure that would be a good thing.

For removal of your dialysis cath, as well as reduction in your anti-rejection meds and lowering of your pred doses...is wonderful!!!

You are coming along so well and I am so very happy for you.
Thank you so much for keeping us updated as to how you are doing/feeling/progressing.

Continued {{{Soft Hugs}}} for you
Special Hugs,

Susie Kraft
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#5 Margaret

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Posted 08 April 2010 - 02:59 PM

Hi Miocean ,

So glad to hear the good news. I hope all continues to go well for you.

Take care, Everyone.
Margaret

#6 enjoytheride

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Posted 08 April 2010 - 05:01 PM

Good to hear from you that you are still progressing. can't wait for the all's well when everything has healed.

#7 erika

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Posted 08 April 2010 - 07:44 PM

It is amasing how this organ transplants work! However after 50 years in the future our children and grandchildren won't have to have operation to have an organ transplanted. It will just be replaced by teleportation. Or repaired with some button switch. :VeryHappy:
Regards

Erika

#8 Sweet

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Posted 09 April 2010 - 03:50 AM

Hey Miocean,
All in all sounds like things are positive. I always love to hear good news. Thinking about you! :flowers:
Warm and gentle hugs,

Pamela
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#9 miocean

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Posted 09 April 2010 - 03:55 AM

Deb1million,

I am sorry to hear about your kidneys.I hope they don't fail and that you don't have to go on dialysis. Dialysis exhausted me. I was on the 3:00 p.m. shift and finished up around 7:00. I would come home and be in bed by 8:30 and would sleep late into the morning. Then I would take a nap in the afternoon. I didn't feel like doing anything. Sometimes I would get really sick during dialysis, pass out and throw up. I would also get really bad cramps that HURT. That happens when they take too much fluid off.

I had a catheter for the entire time I was on dialysis. My vascular system wasn't strong enough for a fistula or a graft which is an access in the arm. I'm glad because it's easy to hook up a catheter, no pain, but the access in the arm is done with needles and they tend to bleed afterwards. It's the preferable way though because catheters are prone to infection. I was careless with my first two catheters and they got infected. I had to cancel a trip once and do at home infusions for one infection. Then I had a catheter that lasted four years. It was just replaced in January because it broke.
You are not allowed to get a catheter wet. I had to wash my hair in the sink and take baths. It became increasingly difficult to get in and out of the bathtub. I worked around it by getting a shower chair and a hand held shower head. I would just be careful not to get the catheter wet. I wasn't allowed to go swimming, which was difficult because we live by the ocean and I love to sim in it.

Do you have any urine output? I didn't so I was restricted to 32 ounces of liquid a day. That was the hardest part. Now that I have to drink a lot of fluid I don't know how I ever did it. Do you know what your creatine is? Mine was 8 but is now down to 1.2 which is in the normal range. I have read a lot about dialysis and transplants and one thing I read was if your kidneys are failing you should get on a transplant list. Take with your nephrologist about that. I waited a year after kidney failure to register because I was told that with scleroderma renal failure the kidneys can come back and I was convince that mine would. I was on 3 lists and it took 4 1/2 years to get a kidney.

I hope this helps and that you don't have to go on dialysis.

miocean
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#10 Deb1million

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Posted 09 April 2010 - 08:52 AM

Thank you, Miocean, for taking time to answer my questions so well. Im still at the early stage of renal failure, and not renal crisis. Ive been diabetic on insulin for 45 years, but the renal specialist says that my kidney damage is due to the sclero, not the diabetes. Ive always tried to maintain good blood sugar control, so have been fortunate in avoiding all common complications such as retinopathy, but then along comes sclero and all its associated problems and Ive suddenly got loads of things going wrong. Ive got Lupus as well, so thats not great for the kidneys.
My urine output is very low, and Im retaining fluid especially on my legs. Im seeing the nephrologist again next month.

Your experience has been encouraging for me,thank you. I hope my kidneys dont get any worse, but Im not as worried as I was when I first got the news.

Good luck for your continued great recovery.

soft hugs
Debs

#11 Joelf

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Posted 10 April 2010 - 04:17 AM

Hi Miocean

It is the most wonderful news that you are doing so well in such a short time after your transplant. :emoticons-yes:

May you continue to improve in leaps & bounds!! :)

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#12 Snowbird

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Posted 10 April 2010 - 11:18 AM

Hi Miocean

Glad to hear you are doing so well and so quickly after the transplant too...such good news! Keep us updated.
Sending good wishes your way!

#13 Buttons

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Posted 18 April 2010 - 08:37 AM

Hi Miocean

I've just got back from holidays and saw your post, I am so glad things are still going well for you, it must feel really good not to have to keep going for dialysis and even with your present restrictions it must be giving you that little bit more freedom.

Take Care

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