Posted 08 April 2010 - 02:02 PM
I am soooooo dizzy, and the room spins. Started Tuesday at about 3 a.m. Went to the doctor and she said it sounded typical vertigo. So gave me a high dose antihistamine any for possible fluid on the ears. Been taking it for 3 days and now feeling more dizzy, when just sitting. With all the other symptoms out there is it another thing of sclero? Just a wondering. I'm suppose to have month 8 of chemo. Will check back if anyone has had vertigo, is it ongoing, or something that will pass, or just some other thing that just is happening, coincidence? HUGS to ALL!
Posted 08 April 2010 - 03:41 PM
I have had my fair share of bouts with vertigo. My doctors have never related it to sclero but ya never know. I have had it so bad upon waking that I slammed into the hall wall and slid down to the floor and could only just stay there. My oldest, then 4, brought me a bowl and the phone and I called my mother in law to get me. By the time I got to the doctor's office it had subsided but WOW! It was like being on a carnival ride.
I still get it from time to time and strangely usually upon waking. I take motion sickness medication for it. It may help or it may coincidentlaay subside on it's own which is usually an hour or two but sometimes lasts 1/2 a day.
I have never thought of antihistmaines, might be a good thing for me to try next time. I can't imagine going for days on end with vertigo. Hang in there and I hope you are feeling stable again SOON!
Posted 09 April 2010 - 03:54 AM
I can relate. I've been that way my whole life. It's usually induced by something, like riding in a car, skiing in the fog or snow, boating etc. but then it sticks with me for days.
I'm not sure it's a scleroderma related issue however. The antihistamine alone will make you dizzy! I think you need to swirl right back into the doctors office, and be checked again.
Posted 09 April 2010 - 04:05 PM
Posted 10 April 2010 - 10:50 PM
I just wrote a fairly long post then lost it before I was able to upload it!!!!!!!!!!!! If by any chance something else appears from me you will know why!!
I think what you are talking about is BPV (Benign Positional Vertigo) It is caused by a change in conditions in the balance mechanism in your ears. I have suffered from this condition on and off for years. A bad attack lasts about 3 weeks and a mild one from a few minutes to a few hours.
Something happens in your ears and it can take up to 3 weeks for your brain to adjust to the new conditions. It is possible to shorten an attack by doing exercises several times a day. You sit on the side of your bed and let yourself fall to one side then the other side then to the back. Repeat this 3 or 4 times more, and then do the whole thing over a few hours later. It seems pretty bizarre and the first time I was pretty scared to do it in case I threw up but I have found it really does help. Your brain is a pretty smart organ and can learn new stuff quite quickly as we all know so while I don't think you can change what has happened in your ears you can teach yourself to live with it.
Of course, it is wise to check with your Doctor the first time but I don't think it has anything to do with Sclero per se, it is just one of those things which happens.
As it's name says it is BENIGN and is just nuisance really. I think if you Google BPV you will quite quickly come up with information which will tell you all about it.
Sea sickness and anti nausea medications do help, and I have some natty little things called Sea Bands which I find do help. The Sea Bands are elasticated bracelets with an acu-pressure button on them. You position the button according to the instructions and the pressure does the work for you.
So take heart, learn to deal with it and you will hopefully find that attacks are few and far between.
Warm Hugs to all From Sunny New Zealand.
Posted 18 April 2010 - 02:59 PM
I sure hope that's all it is. I'm still really dizzy and feel like I have a fog on my brain now. But will see the audiologist tomorrow. Guess those tests are gonna last about 2 hrs. Just one more speed bump on the road of life...
HUGS to All!!
Posted 19 April 2010 - 05:55 AM
The acupressure bands work really well, but you can try the same pressure points without having the bands. The point is between your palm and your wrist, right between the two 'cords' you can feel. If you google 'acupressure for nausea' there is a YouTube video showing you how to do it.
I hope you get over it soon - it is no fun whatsoever!
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Posted 19 April 2010 - 02:53 PM
Posted 19 April 2010 - 04:39 PM
That is good news. Welcome to the family of BPV sufferers!!!!! Not that it is really a family to strive to join but at least you know that we all understand the problem and it could be worse!!
Have you tried doing the exercises? They truly DO help.
Warm hugs from New Zealand