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Want info on vitamin supplements

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#1 Lynnie


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Posted 14 April 2010 - 12:20 PM

Hi Everyone! Please could anyone tell me what vitamin supplements are safe to take! I am 52 and I'm going through the menopause I was on H.R.T a few years back as my periods were coming every 19 days and I was getting very run down. I came off it after 3yrs to see how I fared, and am 26-32 days have been for the last 2 years with no sign of stopping! I had a 4 month miss last year, but its business as usual...still!! :emoticon-bang-head: My questions are

a) Does having scleroderma affect menopause and when you actually stop and are going through it, can it aggravate the scleroderma and make the active phase worse than if the body was quiet and settled?

B) Can you take any herbal supplements to ease the symptoms? Also,general vitamins like fish oils etc, I would welcome any personal experiences of this phase of our lives as am so concerned that I could do more harm than good!
Thanks and warm hugs to all,
Lynn :thank-you:

#2 janey


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Posted 14 April 2010 - 03:12 PM


Please check out our vitamins and supplements page. You'll find several studies on a variety of vitamins that have been proven to be helpful as well as some that have been proven not to be so helpful for scleroderma and its various complications.

In reference to menopause and scleroderma, some studies presented on the autoimmunity and menopause page indicate that scleroderma may cause menopause to occur earlier and could contribute to some complications such as pulmonary hypertension.

Please ask your doctors (rheumatologist and obgyn) these questions and never start taking any herbal or vitamin supplements without consulting your doctor. Some vitamins can affects medications that you may be taking.

I hope you get some answers. Please share any information you get from your doctors. it will help us all.
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#3 erika


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Posted 14 April 2010 - 09:39 PM

Dear Lynnie,

I am also 52 like you are. Three years ago when I started to have pain in joints my physical therapy doctor has advised to start with HRT therapy. My gynecologist has advised the same since I also had endometriosis (uterus thickening). These are small doses of estradiol (Activelle). I reported this to my immunologist and he did not object to further taking it.

I also take a lot of Omega 3 -linen oil (fish oil makes me feel blah) since it acts against inflammation. In addition complex vitamin supplements Menopausal formula. Vitamin B12 (Neurobion) for nerves in legs and arms.
I am planning now to investigate D vitamin sufficiency in my blood since I noticed many sclerodermians have lack of that and my immunologist did not perform that test. And my feet are showing osteopenia. I am not sure what to do about this decreased bone density.

Take care


#4 Jeannie McClelland

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Posted 15 April 2010 - 04:55 AM

Here is a good link to the National Institutes of Health's pages on Vitamins and Supplements.

It is extremely important to talk to your doctor(s) before adding anything of this nature.

In many countries there is little or no testing or regulation on manufacture of these products, nor control of what might actually be in them. There is usually (in the USA, anyhow) a disclaimer printed on the packaging that will say something like: "These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease."

Additionally, many vitamins, in particular, can be toxic if taken to excess. Some of the 'oil-based' supplements like fish oil, flax seed (linen) oil, etc. can cause or worsen stomach upset or diarrhea.

Many insurance programs will pay for nutritional counseling and some hospitals will also offer free "classes". If you have the opportunity to take advantage of such a thing, it's well worth the time and effort. Another source of good nutritional information is diabetes organizations. They'll usually be willing to provide a good handful of free brochures, etc.

Best wishes and healthy eating,
Jeannie McClelland
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#5 Joelf


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Posted 15 April 2010 - 09:14 AM

Hi Lynnie

I was 55 when I finished with the menopause completely & quite frankly I didn't really experience any symptoms at all throughout it (thankfully I wouldn't know a hot flush or a night sweat if it jumped up & bit me!! ;) ) so I didn't have to result to taking any supplements at all.

I was recommended an assortment of vitamins & supplements by The Royal Free Hospital some of which I did start taking but to be honest I haven't found that they've made much difference & they are quite expensive in the quantities I was required to take.

There is one supplement for my lungs which all my consultants have recommended & I've now been able to include that on my pre-paid NHS prescription so it's a little more economical. :)

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#6 Lynnie


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Posted 15 April 2010 - 11:08 AM

:thank-you: To One and All for your advice on my questions, and when I next see my consultant (awaiting earlier call back after my reaction blip a few weeks back!) I will ask the questions about it, also regarding the supplement for the lungs, as if I have a sensitivity to regular drugs to protect them a more natural way would be ideal, less side effects and I would feel better going down that route if possible. I will certainly report back here when I've seen my consultant (a lady! which am sure on this topic she knows about wonky periods and flushing my husband says I could power a power station at times haha) and share with the rest of you what she says, to at least give you an idea what to ask for with your own medical team as we are all different.

Warm hugs to all,