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Prepared Patient: On Your Own With Multiple Meds


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#1 janey

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Posted 15 April 2010 - 08:17 AM

Prepared Patient: On Your Own With Multiple Meds.

Medications are powerful tools and also pose powerful risks. So getting your medication routine down is critically important. (Health Behavior News Service) Newswise. 03/19/10.

This item was posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.
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#2 Shelley Ensz

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Posted 16 April 2010 - 03:29 AM

Thanks for this article Janey (as well as for all the tremendous articles every week brought forth by your news researching team)!

We put medication preparation for the week as an absolute priority, with a set day and hour for filling the week's daily supply into pill keepers and ordering refills then, if necessary.

We have found it is enormously less stressful to have an exact day and hour for it, when we can completely focus on the project at hand, with some beautiful background music. Then, during the week, medication time is always the top priority; everything and anything else can just wait for a minute or two. We reinforce it by reminding each other that absolutely nothing is more important than the medication.

Now, if only the meds would kick in... <LOL>
Warm Hugs,

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#3 Joelf

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Posted 16 April 2010 - 05:43 AM

Hi All

I have my meds in a little line and take them every morning as soon as I've had breakfast. I have a couple of others that I have to take lunchtime and at night, again after meals.

I have one tablet which I take to prevent osteoporosis (unfortunately I do have osteopenia in my hips :( ) and most bizarrely I have to take it first thing in the morning and cannot eat or drink anything else for at least half an hour afterwards. I also have to remain in an upright position during that time so can't take it and then go back to bed!! I usually do my ironing during that time; how boring is that?! ;)

Before I had Sclero I was reluctant to even take a pain-killer if I had a headache!!! :rolleyes: :huh:

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#4 Shelley Ensz

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Posted 16 April 2010 - 01:22 PM

Joelf, I also used to line up all my prescriptions in a row. And then try to remember to take them..."try" being operative word.

Then I stayed with some friends for a week, they saw my set-up and dragged me to the drugstore for a pill keeper. I was amazed how much easier it made my medication schedule!

With pillkeepers, you count out your pills a week in advance, they are marked by day of the week and time of day. We have several different kinds now; my husband even has a very fancy one which can set 24 alarms per day plus keep his pills in it, as well.

Most pill keepers are very cheap (literally just a few dollars) and are easily found in drugstores, usually near the prescription counters. Try it -- you'll like it!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 judyt

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Posted 16 April 2010 - 06:35 PM

Hi Everybody,
Interesting isn't it how we all have our own pet systems for getting the meds into ourselves at the right time.

We too have a whole lot to take each and always sit down once a week to load our pill keepers,in the each evening before dinner we have a cool drink and our evening doses. In the morning they get taken with fruit juice before we start breakfast.

It is also interesting how many couples both have conditions which require medical regimes. 5 years ago ( after my sclero diagnosis) my husband developed a Plasmacytoma in his hip which resulted in his pelvis being all but destroyed, first by the tumour and then finished off by the Radiotherapyy. Fortunately these days such things can be rebuilt and now he has a concrete and titanium pelvis on one side and a load of meds to take twice a day.

The bone building medication lots of us have to take is called Fosamax here and my routine for taking that is to have it when I get up on Sunday morning, then by the time I have showered and dressed 30 minutes have long gone by and I am ready for breakfast. My general practitioner made suggestions about how to deal with it without doing the wrong thing - like forgetting - and that is what suits me best. Some people take it on Sunday and read the Sunday paper while they wait - anything would be less boring than the IRONING!! However, I guess it does get two tedious jobs out of the way at once.

Lets just thank our lucky stars we have all this help available to us these days. In the past - and not so long ago either - I reckon I would now be dead and my husband hanging on for dear life with one leg and probably in a wheelchair or in Care.

As it is we have both spend today helping our married kids at their home, and have brought a Granddaughter back with us for the night at our house.

Take care, stay safe,
Judy T

#6 Joelf

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Posted 17 April 2010 - 01:20 AM

What a good idea, Shelley; I must definately get myself a pill keeper. :)

My tablet is also Fosamax, Judy, although I take the generic equivalent Alendronic Acid. How true your words are; my quality of life is still good thanks to the medication that I have to take. ;)

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#7 janey

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Posted 17 April 2010 - 02:52 PM

I'm glad to see that others found the message in this article as important as I did. I have a 3 prescriptions that I take twice a day but can't take at the same time so I have a system for that and then one that I take 3 times a day. By creating a good system in the beginning, pill taking when and what is now just habit. The only one that I still have trouble with is the second dose of the 3 times a day pill. I should take it around 2 pm. I do have my cell phone alarm set for 2 pm but I don't always remember to have my cell phone with me. :emoticon-bang-head:

I hope everyone can find a system that works for them. Taking your meds the right way is so important. Good luck to us all!
Janey Willis
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(Retired) ISN Assistant Webmaster
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