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Biomarker for Diffuse Scleroderma skin has been discovered!


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Fun in the sun!


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#1 Amanda Thorpe

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Posted 17 April 2010 - 05:22 AM

Hello All

I have just come out of a 4 week fatigue fest during which I didn't even get dressed most days let alone out the front door!

Well today I joined my hubby in the garden while he planted herbs, tomatoes, potatoes and courgettes for me. Some of the herbs are from seed some from plants which means I can have my herbs and eat it while I wait for the seeds to grow!

It was so nice to spend time out of the house with my husband and cat who had to get in on the act, the sun was even out although I sat under my funky pink parasol for shade.

Tomorrow I even hope to treat my husband to lunch out! :emoticons-yes:

Take care.
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#2 Sandy B

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Posted 17 April 2010 - 05:40 AM

Hi Amanda,

It was glorious today, wasn't it. I spent the afternoon in the garden doing crossword puzzles, mowed the lawn yesterday, (it is only postage stamp size so not too tiring!) so today I had a nice lazy afternoon. When the sun shines I feel I could cope with anything, well almost!

So here's to more sunny days.

Take care

Sandy B

#3 Joelf

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Posted 17 April 2010 - 06:09 AM

Hi Amanda

Glad to hear that you're feeling a bit less fatigued at the moment. :)

It's been a lovely day here as well, although very cold morning and evening; I actually managed to get all my washing dry. :emoticons-yes:

It must be very satisfying to grow your own veg and then pick it really fresh from the garden; we've got rhubarb which looks quite healthy at the moment and last year we planted another apple tree and 2 plum trees which seem to have blossom on them, so hopefully we should get some opal plums this year. My husband massacred cut back rather vigorously our 2 old apple trees so I'm not sure whether there'll be any fruit on them this year. :blink:

Hope you enjoy your lunch out tomorrow. :)

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#4 Amanda Thorpe

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Posted 18 April 2010 - 08:49 AM

Hello All

Well we made it out for lunch which was great but then I came home to an email telling me that a friend with scleroderma died on Friday. I never got to see her in hospital thanks to my fatigue fest, my plan was to phone her this week, so much for that.

Take care.
Amanda Thorpe
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#5 Lil Dee

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Posted 21 April 2010 - 11:34 PM

Oh, Amanda, how I feel for you. But, please don't feel bad about not getting to visit your friend, I'm sure she would understand totally - remember, we're all in this together !!

The fact that you have thought about her, and you were there as a friend is enough. And I'm quite sure that she would not begrudge you having the chance to spend time with your husband, as you did. We are all in need of some 'me' time, especially when it includes your partner/spouse/best friend etc.

The sun is still shining down, giving us (some much needed) reason to go out and enjoy our time here, so please enjoy it - for yourself and your friend, who I am sure is happy, healthy and pain free where she is now.

(((HUGS)) LD xx

#6 enjoytheride

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Posted 10 May 2010 - 04:59 PM

I'm so sorry you lost your friend. I find that sometimes, if I knew the person well, I can just close my eyes and have a converstion with them- it does make me feel better to know that they are not that far away after all.
((hugs))