Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Effects of hydroxychloroquin

  • Please log in to reply
1 reply to this topic

#1 enjoytheride


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 367 posts

Posted 24 April 2010 - 02:00 AM

Hydroxyhloroquin has proven to be very effective for me. While not eliminating every problem, it has helped so much with my digestion, vision problems, fatigue and breathing limitations.
Since I come from a long line of worriers and fatalists, it did raise a question with me.
My breathing limitation (not able to expand my chest to breath deeply) improved almost immediately as did the fatique issue. Gradually other improvement have happened. Does the fact that so many different things improved with this med mean anything? I wonder if I have a more widespread problem than limited scleroderma would cause.
I am NOT complaining- I'm grateful for the improvements.
But I do wonder if it has any significance as to the disease itself.
Any thoughts?

#2 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 24 April 2010 - 07:26 AM

Boy, I don't know. That's a tough one and definitely a good one for a scleroderma specialist to answer~

When you say limited scleroderma, do you mean limited cutaneous systemic scleroderma (sclerosis) or CREST or a localized form? I guess the question that springs to my mind is when was the last time you had a good screening for some of the systemic issues that can arise? (I hold an Olympic gold medal in the Free Style Fretting event.)

Warm wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network