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Biomarker for Diffuse Scleroderma skin has been discovered!


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Bad news...may get worse!


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9 replies to this topic

#1 Amanda Thorpe

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Posted 25 April 2010 - 05:06 AM

Have a read of my post on the UK sub forum, I've been blindsided again by scleroderma!
Amanda Thorpe
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#2 Amanda Thorpe

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Posted 30 April 2010 - 09:17 AM

Thanks Andrea! I think you have to laugh because it just gets so bizarre at times, you just never know what sclero is going to do next!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
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International Scleroderma Network (ISN)

#3 erika

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Posted 04 May 2010 - 02:53 AM

Dear Amanda, I am sure you will resolve this problem especially since there is/are visible possible solution/s. All the best.

Erika

#4 Lynnie

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Posted 04 May 2010 - 12:01 PM

Hi Amanda,

I've read your post and feel for you. You give so much to all of us on this site, and, even though we can't change things for you, all our hopes and kind thoughts are with you as I'm sure you know. Keep faith and you'll get on okay.

Warm hugs,
Lynn :emoticon-hug: x

#5 Amanda Thorpe

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Posted 05 May 2010 - 11:23 AM

Thank you ladies, it's great to be able to come to the forum and get support!
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
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ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 Kathy D

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Posted 07 May 2010 - 01:46 AM

Amanda,

You are in my thoughts and sending lots of cyber hugs.

Kathy
Diffuse Scleroderma Diagnosed March 2009

#7 Vanessa

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Posted 07 May 2010 - 08:07 PM

Hi Amanda

Just to say I am thinking of you and hope you have some good time this weekend.

Best wishes

Vanessa

#8 Deb1million

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Posted 10 May 2010 - 08:47 AM

hi Amandas
Just wanted to say how much I love your new dress! Your avatar looks super!

I hope your ticker continues to behave and you have no more ambulance episodes!
:emoticon-hug:

ciao!
XX

#9 erika

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Posted 11 May 2010 - 03:02 AM

Amanda,

The new dress is nice and it fits you perfectly but the old one was much cheerful and it made a wonderful contrast to your black cat. This one is much more serious and suitable for evening cocktails, not so much for every day forum minglings. However it is good to have a change. I am looking forward to see what other clothes you are hiding in your wardrobe.

Regards,

Erika

#10 Vanessa

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Posted 12 May 2010 - 02:23 AM

Hi Amanda,

Shes right you know, that Erika, the new frock is a bit statesmanlike and serious.

I hope you're not going all "grown up" on us!

Big hugs.

Vanessa