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Facial scarring...out of nowhere?


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#1 Sweet

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Posted 25 April 2010 - 08:31 AM

Hi Everyone,

A few months ago my forehead right above my eyes and into my eyebrows began to itch. About a month ago, I noticed the skin appearing tighter looking and a bit shiny. Over the past month, I've noticed scars around my mouth, chin, and now on my cheeks and forehead that are appearing literally over night. The scars on my forehead are thin white lines that go vertically. The scaring around my mouth and cheeks are flat slightly raised rounds spots. I'm getting concerned because its happening fast, and I've never heard anyone talk about this. Also cause I'm vain, and don't want to live with big, flat, white scars all over my face. Make up does not cover them, actually it makes them looks worse. I made an appointment this next Thursday with a dermatologist. I hope he can help, but I fear he won't have a clue.

I'm wracking my brain, about new meds, lotions, (although there is no rash, just scarring) etc, nothing is jumping out at me.

Has anyone else had this problem?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#2 Jeannie McClelland

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Posted 25 April 2010 - 10:00 AM

Hi Pam,

I had the itchy spots above my eyebrows and now have about a centimeter round scar on both sides where the itch was, plus one on my temple that never itched. It seems to have stopped at that.

I asked my dermatologist about it and got the "hmmmm" that means "I don't have a clue but it doesn't look too serious to me". I'll be really interested to hear what others say and your dermatologist too.
Jeannie McClelland
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#3 janey

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Posted 25 April 2010 - 04:10 PM

Pam,
I have not had anything like what you describe. I did develop a facial rash around the lips about a year ago and went to the dermatologist. He took one look and diagnosed it as Perioral Dermatitis, something I had never heard of. I was very impressed at how quickly he made the diagnosis and apparently he was correct. He put me on antibiotics for 2 months, told me to stop using the particular toothpaste I was using and it went away and hasn't return. So hopefully, your dermatologist can diagnose your condition and get you on the way to recovery. That's why we have specialists. Please let us know what you learn. It's curious.
Janey Willis
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#4 enjoytheride

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Posted 26 April 2010 - 03:25 AM

Maybe a thought should be given to old lotions, makeup and soap. Could you possible have developed a reaction to things you have used without problem previously?
If sounds very frustrating and I hope that you find the answer soon. Hugs- Cindy

#5 enjoytheride

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Posted 26 April 2010 - 03:27 AM

Oh- and maybe makeup brushes or scrubbers?

#6 Snowbird

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Posted 26 April 2010 - 12:51 PM

Sweet, I don't have a remote clue.

Will be interesting to hear what your dermatologist says about it on Thursday? Hopefully, he/she will know a little more about it than Jeannie's dermatologist knew when she went. With luck, maybe yours will also stop like Jeannie's did as well.

Good luck with your appointment.
Sending good wishes your way!

#7 Sweet

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Posted 27 April 2010 - 08:58 AM

Oh I like what Janey said. I hope It's something easy like that, but this is actually scars... so I have a feeling it's the sclero working it's magic. :( This will be a tough transition of mental coping for me if that is what it is.

Appt Thursday, will keep you posted.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 Shelley Ensz

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Posted 30 April 2010 - 03:00 AM

Hi Sweet,

Did you find out anything from the dermatologist yesterday? I'm crossing my fingers for you, hoping it is something that can be remedied.
Warm Hugs,

Shelley Ensz
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#9 Amanda Thorpe

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Posted 30 April 2010 - 09:01 AM

Hello Pam

How are you getting on, I hope the marks aren't permenant. I don't know of any woman who wouldn't be concerned about facial changes, it was one of my first concerns when diagnosed.

Take care.
Amanda Thorpe
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#10 Sweet

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Posted 03 May 2010 - 08:08 AM

Hi,

The dermatologist feels it's "The sclero". My entire body feels like I have a sunburn now, but I don't, but I am red. The focus of this is on my forearms, shins, and face. My face is changing daily, with a white scar, shiny patch, tight patch, dent, scaly patch etc. My shin, are very tight, I can barely pinch the skin. My joints, fingers etc are all more painful than normal, and I haven't felt well at all. The dermatologist doctor told me to see my rheumatologist. So I called and he doesn't have any open appointments for months, but I can get into see his Nurse Practitioner on May 27th. I'm a very vain person, so this skin change is the worst thing that can happen to me. :temper-tantrum:

I'll let you know what the NP say after my appointment.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#11 Shelley Ensz

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Posted 03 May 2010 - 08:43 AM

Hi Pam,

I'm sorry for all the symptoms you're experiencing now. Having it all go haywire at once is a bit much, isn't it?

I really don't know what to say. Are you okay waiting that long? Do they have any flexibility at all, for more urgent situations?
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#12 Sweet

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Posted 03 May 2010 - 08:47 AM

Hey Shelley,

Ya, I think I'm OK with waiting. She did say she would call me if there were any cancellations, but knowing this Medical assistant as I do, she won't call even if there was an opening. I guess I should really look at all of this differently and be glad that basically for 10 years I have had it mild compared to others. I just don't want to look different! :emoticon-bang-head:
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 Snowbird

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Posted 03 May 2010 - 08:52 AM

Hi Sweet

I'm sorry to hear that too. I was so wishing for better news for you. Perhaps the nurse practioner can get you into the rheumatologist a little earlier, once you get there, if needed? Take care.
Sending good wishes your way!

#14 enjoytheride

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Posted 03 May 2010 - 03:01 PM

Hi Sweet-
I'm so sorry for your having to wait like this. I would be upset if there was a cancellation and no one called.
If the MA won't call you, would the receptionist?
Hugs and lots of them- Cindy

#15 Lynnie

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Posted 04 May 2010 - 12:16 PM

Hi Sweet,

I feel so for you. I know what is happening is the absolute worst nightmare but please m'love always remember to those who love and know you see that you are a beautiful person with a story to tell!! Beauty is skin deep only and what's inside is what's important. :emoticons-yes: That woman sounds horrid bypass her or report her for lack of professionalism you should not be treated in such a manner!! Keep faith ban the mirrors and just be....You :emoticons-yes:

Warmth and support,

Lynn xx

#16 Sweet

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Posted 11 May 2010 - 12:07 PM

Just got back from seeing the rheumatologist. They feel the changes in my face is a flare,and progression of the disease. A couple of the patches looks like Morphea...Also the hardening of the skin on my legs and the severe pigment changes are all progress... they want me to start on methotrexate........I just don't know if I want to do it!!! I'm so exhausted physically and mentally, I was so hoping that since I haven't progressed too much in 10 years, that I would stay like that. ... I just don't know what to do. I'm so torn about whether I should start the methotrexate or not. Ugh. I guess if I would have seen MY rheumatologist I would feel a bit more grounded and probably would know what to do, but I couldn't get into see him of course so I saw one of his NP. She was great, I really liked her and she seemed to know her stuff...I just wish I knew what Gary thought... (rheumy) Anyway, I'm a basket case.

Shelley, Jeannie or anyone, if you can help me locate any threads where we discussed pros and cons about methotrexate I'd appreciate it.


OK heading off to continue my nervous breakdown and panic attacks and leave you guys in peace.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#17 Sweet

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Posted 16 May 2010 - 05:24 PM

Hi,
Would anyone be able to share with me thier experiences with Methotrexate?

Good, bad, ?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#18 Sweet

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Posted 20 May 2010 - 04:08 AM

No input on Methotrexate? lol Come on you're killing me here :lol:
Warm and gentle hugs,

Pamela
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#19 Shelley Ensz

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Posted 20 May 2010 - 01:34 PM

Hi Sweet,

Oh, you always make me either laugh or smile. How do you manage that, anyway?

I looked up a methotrexate thread for you. Just read all the warnings really carefully, including avoiding use of all NSAIDs and alcohol, as it can cause fatal interactions/effects.
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#20 Margaret

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Posted 20 May 2010 - 02:53 PM

Hi Sweet ,

How about just increasing the Plaquenil dosage or at least giving that a try till you decide to go on the Methotrexate? Just an idea. I'm sorry you're dealing with this now.

Take care, Everyone.

Margaret