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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Dale's girl

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Posted 09 May 2010 - 03:47 AM

First of all, Happy Mother's Day to al the other moms out there.

I am new to all of this - my diagnosis and this forum. I have a recent diagnosis of CREST and going for more tests soon. I have had health problems for years and, until recently, have pretty much been told my problems were either in my head, nothing to worry about, or just something to be lived with. (Sound familiar?) Over the past year things had gotten worse and new symptoms appeared so I kept talking to doctors until I found someone who would help. Now that I know what is going on with me I have been trying to find out as much as I can.

Last year I went to my eye doctor because I suddenly had a lot of floaters in my right eye. A lot of floaters! I was concerned but she said that even though there were a lot of them I didn't need to be worried. But that was before I know what I have. I got them at the same time my other symptoms were worsening. Has anyone else had the same problem? If so, do they get worse? Are they part of Sclero?
Thank you. :o)
"Be kind, for everyone you meet is fighting a hard battle."
Plato

#2 Jeannie McClelland

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Posted 09 May 2010 - 04:18 AM

Hi Dale's Girl,

Welcome to the Forum. I'm sorry about your diagnosis of CREST, but hope we can offer you good, reliable information and friendship.

Floaters - I know about those! I've had a number of them for years and they are really maddening. It's my understanding that they are usually benign. The eye is filled with a sort of gel and pieces of it will sometimes break loose from the back of the eye and float about. We can't actually see the floater itself, what we see is the shadow of it on the retina. That being said, if you suddenly get a lot of new ones and/or get flashes of light, that can indicate a tear in the retina, or that it is becoming detached, and that constitutes a medical emergency and you should see your doctor immediately.

I haven't heard any suggestion that there is any correlation between floaters and scleroderma, although they can be a symptom of uveitis which can be associated with scleroderma. You can read about scleroderma eye involvement here.

Thanks for the Mother's Day good wishes! I hope you have a happy one too. :flowers:


Best wishes,
Jeannie McClelland
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#3 janey

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Posted 09 May 2010 - 05:22 AM

Dale's Girl,
My floaters came on suddenly as well several years ago, but I haven't noticed that they have gotten worse. Sometimes I just have to wait for them to move out of the way so I can see. :blink: My husband had floaters long before I got them and he's healthy as a horse. Our eye doctor said they are pretty common and more a result of aging than disease. However, she always ask about flashes of light (as Jeannie mentioned), because that does indicate a immediate problem. I don't like them, but like everything else, now I'm just use to them.

BTW - Welcome! Look forward to getting to know you!
Janey Willis
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#4 Amanda Thorpe

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Posted 09 May 2010 - 05:53 AM

Hello Dale's Girl

Welcome to the forum and count me in on the floaty things! I've had then for years but they don't appear very often so the are no bother to me.

Take care and keep posting.
Amanda Thorpe
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#5 Joelf

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Posted 09 May 2010 - 06:35 AM

Hi Dale's Girl

Thankfully I've never had floaters (I recently had an eye test and everything was normal! ;) ) so can't offer any constructive advice to you, but wanted to welcome you to this friendly and informative forum. :bye:

I look forward to reading your posts. :)

Jo Frowde
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#6 Dale's girl

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Posted 09 May 2010 - 12:41 PM

Thank you all! :) I am still full of more questions than answers at this point and it was really great to find this forum.
Have a great week.
"Be kind, for everyone you meet is fighting a hard battle."
Plato