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Oh Dear, diagnosed with early infertiltiy


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#1 Kathy D

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Posted 09 May 2010 - 12:34 PM

With approval from my rheumatologist primary care physician, and specialist, to get pregnant, I stopped methotrexate in March in anticipation of trying to conceive in August - my dreams taken away too soon.

At my pre-pregnancy visit my hormones came up in POST-menopausal range, or premature for my age. There is an association with autoimmune diseases and premature ovarian faiure, I doubt we will find the cause, as infertility is not covered under our insurance and is very expensive.

thanks

Kathy
Diffuse Scleroderma Diagnosed March 2009

#2 Margaret

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Posted 09 May 2010 - 01:41 PM

Dear Kathy ,

I want you to know I will keep you in my thoughts and, just perhaps, them ovaries will 'kick start' themselves in a couple of months. How about eating lots of soy products? They are estrogen based. I'm sorry to hear your news.....I wish modern medicine had all the answers.

Take care, Everyone.
Margaret

#3 Jeannie McClelland

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Posted 09 May 2010 - 03:46 PM

Ah, Kathy, I am so sorry to hear that. What a shame~

I'll also keep you in my thoughts and hope that good things happen. The 37-year old daughter of one of my oldest friends was diagnosed with breast cancer and at the same time found out she was finally pregnant after having just about given up. She had a mastectomy and carefully tailored chemotherapy. She had a gorgeous little girl on time, and in perfect health about 2 months ago. Don't give up hope yet.

The warmest wishes and a big hug,
Jeannie McClelland
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#4 Amanda Thorpe

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Posted 10 May 2010 - 10:02 AM

Hello Kathy

I am so sorry, what news to be given. I hope in the long run it turns out to be wrong.

Take care.
Amanda Thorpe
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#5 enjoytheride

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Posted 10 May 2010 - 05:14 PM

I can't say how much I wish that it went smoothly for you. Did the doctor say that it might change as your system gets used to the lack of medication?

#6 Shelley Ensz

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Posted 11 May 2010 - 02:52 AM

Hi Kathy,

I'm sorry to hear of this and send lots of warm hugs to you! :emoticon-hug:

Did your doctors explain that premature ovarian failure can be caused by methotrexate, and that often things naturally restore after being off it for awhile? "Awhile" is a rather nebulous term, of course. But ovarian failure doesn't mean that the whole system has entirely failed (in most cases). As I understand it, it means it is less likely to work properly but not completely impossible. Give it some more time, see how things go. You might yet be surprised; unless the doctors have told you that will not happen in your particular case.
Warm Hugs,

Shelley Ensz
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#7 Snowbird

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Posted 11 May 2010 - 11:32 AM

Hi Kathy

I'm sorry to hear your sad news...but like the others suggest, try if you can to stay positive in the hopes it is just temporary after all, especially if the doctors didn't say it was fully impossible yet. Hopefully, it is just too early to be 100% sure of anything? Remember, even without complications, these little miracles can take a little longer to happen with some couples.
Sending good wishes your way!

#8 Kathy D

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Posted 12 May 2010 - 01:56 PM

I can't tell you how much you kind words meant to me <3 Thank you!

I have an appt with a fertiltiy doctor next week and I will let you know how it goes. Shelly, I was not told of the methotrexate effect but have to tell you (I have become a mad scientist with pee on sticks, testing for menopause as well as ovulation) and I hope I am seeing a slight improvement, and praying its not my imagination.

My heart and thoughts go out to all you dealing with different and varied sclero issues, I send cyber hugs and hope.

Kathy
Diffuse Scleroderma Diagnosed March 2009

#9 Kathy D

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Posted 25 May 2010 - 04:42 PM

Hi Ladies,

I hope all of you are getting along well :VeryHappy:

Just a quick update.

We saw the fertility specialist last week. I am "almost" in early menopause but we arent out of the game yet :emoticons-yes:
He is doing genetic testing on me before we make any plans. It appears whatever lucky gene I have that caused sclero and ra might have affected my ovaries too. The gene may have either attacked my follicles and there arent any viable ones left, or attacked my follicles and altered the dna so I cannot produce a healthy child (likely to miscarry due to genetic abnormalities or be born with severe defects). We get the results in 2.5 weeks and I will let you know!

I have quit several of my medications in anticipation of pregnancy, (yes, with blessings from my ALL my doctors). I will start a separate thread on that, doing quite well without them.

Well wishes to all
Diffuse Scleroderma Diagnosed March 2009