Posted 14 May 2010 - 07:10 AM
Started off by seeing the doctor then being sent for ECG, lots of blood tests with same old problem of not giving it away easily! Infact the person who did it said the veins are small and felt very hard, whatever that means! Then I had to have a doppler scan and a CT brain scan. I had to go to the diagnostic unit in the afternoon to wait for the doctor to give me the results so it was a long day.
Well he said I had not had a stroke but am having TIA's so am now on another 3 tablets, asprin, simvastin (lowers choletsrol, even though mine was only 2.5 in January) and also a blood thinner called Persantin. I really will shake and rattle now.
I have to go back in 6 weeks and cannot drive for 4 weeks which is a real bummer for me. Still I suppose its all better than ending up having stroke.
To top it all off I have my neuro surgeon appointment on Monday due to trapped root nerves in my upper spine which causes numbness in my arms and pain in my upper back, talk about feeling as if my body is falling apart even though on the outside I look fine! So updated my list of medicine ready to take with me - hubby will now have to drive me there. Then on Monday evening I have to go for this stomach scan organized by my rheumatologist so it will definitely be another busy day. It really does feel like one thing after another and never getting better but just coping with yet something else.
Posted 14 May 2010 - 08:15 AM
Never rains but it pours eh? Yes it does feel like one thing after the other! It is good that you've had such prompt and excellent treatment even though it's lead to yet another diagnosis and more medication, I've also just started 3 new medications of which two are aspirin and an antiplatelet agent.
Try to be encouraged by the fact that at least you're getting good treatment for each problem as it arises, as unwanted as it may be. A friend of mine who posts on this forum has 10 auto immune disease...so it's quite astonishing what the body can cope with and still function!
I hope that you're able to feel better soon and that no other problems come along.
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)
Posted 14 May 2010 - 08:54 AM
You sure are going through a lot of tests but at least they are getting to the bottom of things. Seems like with scleroderma there are always new things cropping up and more medication to take. Good luck on the rest of your tests.
Posted 14 May 2010 - 09:08 AM
I hope you are soon feeling better and that those scary symptoms stop. Stroke is nothing to fool with.
BTW the last time I had an IV, the tech actually couldn't get the needle in a vein either- she said that she could find the vein but when she went to push it in, the vein "kicked it out." After two people tried it, I finally went outside, climbed a hill as fast as I could and walked straight into the back office, huffing and puffing. Then they could finally get it in.
Ans so my reputation for weirdness grows and grows.
Posted 14 May 2010 - 10:16 AM
Sorry you have had the worry of thinking you might have had a stroke - I know what that feels like. I did find that I had a little one in the balance area of my brain and the Neurologist said that almost everybody in our age group would probably have had at least one. Interesting! Just as well to know, and you are very right, that because we have an ongoing disorder we get extremely good care and constant attention so nothing should be able to creep up on us.
Take care and keep working to avoid a stroke.
Hugs from New Zealand
Posted 15 May 2010 - 04:36 AM
You certainly are having a time of it lately. Scleroderma is a bit like the weather in the uk, unpredictable and when it rains, it pours. Hope the meds prevent any further `funny episodes' although they're not so funny are they! Good luck with your next batch of tests, hope all goes well for you.
Posted 15 May 2010 - 06:37 AM
At least you do seem to be getting very good treatment and I do hope your appointments on Monday with your neurosurgeon and your rheumatologist are very successful and that you are soon feeling a little better.
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)
Posted 16 May 2010 - 12:48 AM
Does anyone know what they mean by my veins being hard? Is this down to the sclero? I know a lot of you have issues with bloods being taken what do you do to make it easier when they take blood? I had already warned them about using a very fine needle but it didn't help this time.
Posted 20 May 2010 - 04:39 AM
I'm sorry about your TIA's goodness you've had to deal with quite a bit this past year. I do know sclero affects some things vascularly, but not sure about the veins getting hard.... Maybe someone else will have input on that. Just wanted you to know I'm thinking of you.