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Fired my rheuma (insert D. Trump's: YOU'RE FIRED!!)

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9 replies to this topic

#1 Eos


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Posted 24 May 2010 - 09:14 AM


I was seeing a doctor in Buffalo NY and never felt like she cared or even tried to help me. I had to initially beg her to give me something for my Raynaud's, only to almost go gangrene a year later needing a sympathectomy.

She won't help me with joint pain and stiffness, unbearable fatigue and general just feeling like I cannot push myself through the day anymore. She thought as long as I still have sick time, I am not too bad. Now no more sick time I am in a MAJOR fail-up and she still does not care to help me. So I requested my medical records and SEE YA! Every non-medical person can put a positive CCP and extremely painful and stiff knees together = patient needs help.

Sorry I am just soooooo frustrated and painful. Even laying down with a pillow under my knees hurts! :temper-tantrum:

Seeing new rheumatologist on June 1st. I have a tiny bit hope!

#2 Shelley Ensz

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Posted 24 May 2010 - 09:52 AM

Hi Eos,

I'm sorry things didn't work out with your rheumatologist.
I hope things go lots better with your new one. In fact, I'll wave my magic wand to try to make that happen for you -- :fairy:
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Jeannie McClelland

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Posted 24 May 2010 - 12:01 PM

Sometimes you just have to do it~ Having a competent doctor that you can partner with makes all the difference in the world. ^_^
Jeannie McClelland
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#4 Buttons


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Posted 24 May 2010 - 08:55 PM

Hi Eos,
There is nothing worse than having a doctor who doesn't appear to listen or care, my own Rheumatologist has had moments when appearing not to care or help but here in the UK it's not that easy to change consultants.

I do hope your new Rheumatologist gives you the help you so clearly need!


#5 Amanda Thorpe

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Posted 25 May 2010 - 03:07 AM

Hello Eos

Having fired her have you considered writing and telling her why? She may be oblivious and benefit from the explanation, maybe her other patients would also.

Either way you persevered long enough and I hope that you can work with your new rheumatologist.

Take care.
Amanda Thorpe
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#6 Kathy D

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Posted 25 May 2010 - 05:02 PM

Good for you standing up for yourself and your health Eos!!

I suddenly had to find all new doctors when joining my husband's insurance plan after I was laid off and lost my own coverage. Guess what!?! I found great doctors that I trust much more than my other ones :rolleyes:

Like you, I am also anti-ccp positive, but my doctors treat me accordingly despite being RF negative.

I have severe Raynauds, no ulcers in 1.5 years but my rheumatologist still has me on a vasodiolator to prevent them. I hope you find a good rheumatologist that takes better care of you, I am guessing most of them won't let you go for as long as you did with the dead finger.

Good luck!
Diffuse Scleroderma Diagnosed March 2009

#7 relicmom1


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Posted 26 May 2010 - 02:54 AM

Eos, don't feel bad about having to fire your rheumatologist. Been there ...done that....I went thru 3 before I found one that cared and knew about sclero. It just so happens that she is one of the sclero specialists at Johns Hopkins. With all we have to contend with, you cannot afford to have a doctor that doesn't know or just doesn't seem to care. I wish you luck with your new one.
Peace :)
Barbara aka relicmom1

#8 Sweet


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Posted 27 May 2010 - 11:58 AM

Good for you!!

That takes guts, and I'm glad to see you being your own advocate. Do you have someone else in mind?
Warm and gentle hugs,

ISN Support Specialist
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#9 Snowbird


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Posted 27 May 2010 - 12:21 PM

Hi Eos

Good for you is right! Don't stop until you find one that is good to you and understands your needs...you may need to go through a few, but when you find the right one, you'll know it immediately and I have no doubt that you will find that special one for sure!! Unfortunately, all good things can take time.

Good luck on June 01st...will be anxious to hear how that new appointment goes for you. I have hope for you too!
Sending good wishes your way!

#10 enjoytheride


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Posted 28 May 2010 - 06:06 AM

I'm jealous. There are only two rheumatologists within a couple of hundred miles. And they keep firing me!
Well- actually the one I first saw 2 years ago left on sick leave and now her replacement is gone on sick leave too. The second one didn't last a year. The poor sole rheumatologist can't keep up at all.
I live in one of the most beautiful places on earth but it is hard on some people. If you can't take rain and fog, it can wear you out.
Oh well- if it was easy, everyone would live here.

I hope your new doctor really helps.