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Gocartmoz


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12 replies to this topic

#1 Bird Lady

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Posted 12 February 2007 - 08:19 AM

Just wondering if anyone has heard from "gocartmoz" I haven't seen anything from him since late january.
Hope all is well
Birdmans Wife
Hugs for All,

Julie (Bird Lady)

#2 oddone

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Posted 12 February 2007 - 09:01 AM

I was wondering too.....
I hope all is well
Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma
Normal PFT(July 06), ECG(Nov/06)

#3 LisaBulman

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Posted 13 February 2007 - 02:24 AM

We haven't heard anything....

Hopefully everything is going well.

Lisa
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#4 Sweet

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Posted 13 February 2007 - 12:00 PM

Hmmmm have not heard a thing..... he'll check in soon I hope.
Warm and gentle hugs,

Pamela
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#5 GocartMoz

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Posted 18 February 2007 - 05:14 AM

Hello Everyone,

Thanks for the post. I have been at Duke since Feb 9 and just returned home yesterday. I am happy to report that this trip went very well. Unlike last time tere were no bumps in the road. I have now completed apheresis and they have finally collected enough of my stem cells to harvest. The only minor problem was that I was extremely fatigued and they found my hemoglobin count was very low. A few bags of new blood and I was a new man, however. I return on March 6th when I will be hospitalized and do 2 days of radiation and 2 days of chemo. Then comes day 0(the reinfusion of my stem cells). I am told I will be in the hospital for approx. 21 days thereafter. I can fell the end of this whole journey in grasp. Wish me luck and thanks for all your concern. Knowing there are those out there who have me in their thoughts is very comforting.

Dave

#6 Heidi

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Posted 18 February 2007 - 05:35 AM

Hi Dave,

Thanks giving us all your update. I am glad you are home again and that things went smoothly this time. I am sure you are anxiously awaiting the 6th to get things going. You have an amazingly positive attitude and I am sure that is carrying you far. Please do keep us all posted!

Warm wishes,
Heidi

#7 Sweet

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Posted 18 February 2007 - 05:55 AM

Dave,

Thanks so much for the update. We will be wishing the best and keeping you in our thoughts.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 bookworm

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Posted 18 February 2007 - 08:48 AM

Good luck, Dave! I will certainly be thinking of you.



Mary in Texas

#9 janey

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Posted 18 February 2007 - 10:36 AM

Dave,
So could to hear that things are progressing. You sound great!

So if I may ask, would you mind describing the harvesting process. You read things but never get it from the patient's perspective. If you'd rather not, I understand.

We're right there with you and know that things are going to turn out simply marvelous!

Big Hugs,
Janey Willis
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#10 emmie

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Posted 18 February 2007 - 05:05 PM

Dave,

Wonderful news! Enjoy the time with your family while you build strength and await the sixth!

xoxo emmie

#11 Bird Lady

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Posted 19 February 2007 - 06:30 AM

Gocartmoz So glad to hear from you and glad things are going well.
Birdmans Wife
Hugs for All,

Julie (Bird Lady)

#12 GocartMoz

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Posted 19 February 2007 - 09:26 AM

Thanks again for all your thoughts. Janey, unfortunately I don't have any technical responses to your question. Apheresis or the act of collecting the stem cells is a pretty simple process from the patients perspective. Basically, for 4 days I was hooked up to a machine through my hickman catheter and sat in a chair for 6 hours while the machine broke down my blood and did the work. It is painless, although after 6 hours you become pretty worn out and fatigued. Basically, the machine does all the work. At the end of 6 hours, there is a bag that is filled with your blood that has your stem cells in it. Overnight somebody processes the bag to actually obtain the stem cells. Apparently, the processing part is fairly tricky depending upon the individual. I was told mine were very "sticky" and difficult to process, thus 4 days to collect enough to harvest. I hope that answers your question, although very basic. They give you dvd's to watch during the 6 hours. I basically listened to my ipod and slept. Talk to ou soon.

Dave

#13 janey

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Posted 19 February 2007 - 10:51 AM

Dave,
Thanks for the explanation. That's what I was looking for - the patient's perspective. I'm glad to hear it was physical painless, just boring.
Big Hugs,
Janey