Is this a coincidence or not??
Posted 28 May 2010 - 12:15 PM
So, a couple of weeks ago (maybe I was going into denial), I decided to try and see If I could manage without the prescription Nexium. I went out and purchased an over the counter liquid instead, to see how I would go on that. After about one week, my bowel habits started to change slightly, the cramps went along with the nausea. It has now been nearly three weeks without the Nexium, I am happy to say, there has been no GERD, I now go to the toilet every day, as if I was normal, there is no pain, constipation, diarrhea, or vomiting.
So, now I am wondering, was it the Nexium that started all of this off, or just coincidence. I also don't get hot flushes any more.
Posted 28 May 2010 - 01:41 PM
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Posted 28 May 2010 - 03:01 PM
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Posted 29 May 2010 - 07:48 AM
But my doctor also did warn me about the dangers of GERD- that even if I can't feel damage, it could be happening.
It is so confusing- sometimes I feel like a fly in a bottle- busy banging away at the sides, thinking that I can see a solution but for some reason I can't get there. :/
I hope you have success. Do let us know how it goes.
Posted 29 May 2010 - 08:11 AM
Glad to hear you've solved your problem for now and are feeling better.
That said (and I am not a doctor, and of course everyone is different)...but as I understand it, for treatment of scleroderma esophageal involvement Mylanta, H2 inhibitors, etc. are not considered safe substitutes for PPIs like Nexium. As my primary care physician told me recently, different PPIs work better for different people, and sometimes it's necessary to experiment to see which one works for you.
I've had my scleroderma with a lot of esophageal involvement for 10 or 11 years now, and after a few years stopped taking omeprazole for no good reason. I thought I'd do OK without it. If I had a lot of heartburn, maybe once in a great while I'd pop a few Tums. Now the entire bottom half of my esophagus is one long stricture with food constantly stuck above it, and I have Barrett's esophagus to boot, for which the lifelong cancer surveillance is not fun, believe me. And I'm relatively lucky so far. Now I take 80 mg. a day religiously, and I'm damned grateful the insurance agreed to pay for it.
So please, Summer, don't just decide on your own that you can do without any PPIs. If you do need to be on them, maybe one of the other ones will do the job without making your life unbearable.
Please excuse my rant, and keep us posted!