Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Arthritis of the wrist/thumb


  • Please log in to reply
3 replies to this topic

#1 mando621

mando621

    Silver Member

  • Members
  • PipPipPipPip
  • 212 posts
  • Location:Wisconsin

Posted 25 June 2010 - 12:19 PM

Hi,

Today I saw an orthopedic doctor for my wrist. I guess I have osteoarthritis in the base of the thumb and in the wrist too. She used the term sclerosing in the joint, and my understanding is that that is the term for osteoarthritis. My thumb is beginning to move out of position due to the loss of cartilage. So I received a prescription for a gel anti-inflammatory since NSAIDS usually cause major stomach problems for me. I'll have to see if this helps. I also have a ganglion cyst at that point on my thumb as the result of shaking hands with someone about 9 months ago. Is a person with scleroderma more prone to osteoarthritis?

My referral to a scleroderma specialist was turned down by my insurance. I'm wondering what changed in my records, and I really should get copies of everything, since the doctor today mentioned that I was dealing with scleroderma. Up to now it has not been part of a diagnosis as far as I know. So, maybe my visit to the second rheumatologist put that into my records.

I have physical therapy ordered for my wrist, and I've ordered a splint with thumb support so I hope this becomes more manageable.

Mando.

#2 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 25 June 2010 - 04:44 PM

Hi Mando,

That's a real shame. I'm guessing it's not too enjoyable playing fiddle or mandolin at the moment, is it? I hope the OA isn't affecting your dominant hand, but it kind of sounded like it.

I have what I'm guessing might be the same gel NSAID that I use for some of my more tender joints. Don't forget that although it won't hit your stomach the same way an oral medication does, you should still be aware that you should 'count' it because it does enter the system. It's the same sort of thing as using an anti-histamine gel for a rash and then taking an oral one for hay fever.

It's my understanding that osteoarthritis is mostly due to wear and tear over time. I couldn't find anything suggesting that scleroderma makes it any more likely, but then who really knows?

I recently got updated copies of my records. It's really only sensible and if you want to appeal your insurance company's denial, knowing exactly what is said in your records would help. It kind of reminds me of my mother-in-law's comment that she was paranoid, but was she paranoid enough. ;)

Hope you have a nice weekend,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#3 mando621

mando621

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 212 posts
  • Location:Wisconsin

Posted 26 June 2010 - 12:48 AM

Hi Jeannie,

It has been a long time since I've talked/written. Yes, I have measurement cards to use with the gel. At least it smells good. I have to make sure my cat doesn't lick it.

Maybe too much knitting lately? I am making a summer tunic with a slightly lacy pattern in silk/cotton yarn. I haven't really been going too fast with it, so it is probably the accumulation of all of what I do that is bothering my hand. I made two decorated cakes recently and that type of activity is tough on the wrists.

I haven't been playing music as often as usual. I think I'm in a dry spell with that. I'd like to find some people locally to play Celtic with, but I haven't made any moves to do that. I did start a knitting group at the library twice a month. It has been fun getting together and visiting while working. I was holding a 6 month old for the mother last time because my hands needed a rest.

My husband is still in the job search. It has been very difficult for the whole family. Our eldest daughter is home from college for the summer, and she would rather be anywhere else. I think the rest of us would rather have her somewhere else too. She is working two jobs and isn't really happy with either. College student, Junior, at home with family = conflict, stress, and havoc. We are all treading on egg shells around her never knowing whether we should talk to her or not.

I think the stress of the situation has aggravated things. I was doing fine joint wise, and now I seem to have so many more aches and pains.

I am receiving some stipends for my work this summer, so financially we are ok for a while. I signed my 2 year contract.

Well, I guess I should put in a request for my records again. It has been a couple years since I requested a big packet of everything the clinic had. The problem I have, I've seen doctors in different clinics and some haven't gone to computer records just yet. I can't get the specialists notes from an online mychart, only primary care doctors have a web access and my primary is through a different health system. I'm thinking about changing my primary again. I can't get in to see her for issues without waiting two weeks or more. I had an infected toe and I couldn't see her for 2 1/2 weeks, so I figured I'd skip the appointment. It was better by the time I'd have been able to see her.

Thanks for writing. I keep up with postings, but I haven't posted myself or participated in chat lately. I was getting a little too preoccupied with computer searching and posting and too much thinking about problems.

Have a great summer too.

Mando (Lori)

#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 26 June 2010 - 08:48 AM

Hello Lori

Long time no post! I'm sorry things are stressful at home, since having sclero my ability to cope with stressful situations has vanished, thankfully there aren't any on the radar at the moment.

Trying to get your medical records does feel like a big job but what's not on computer will be on paper and can be photocopied. I don't know what the situation is in the US but now in the UK you can ask for copies of your records and last time I was in hospital they gave my file to me to take onto the ward with me. I was very diasappointed at how boring it was! :lol: It ain't now though with all my heart test results in it. :emoticons-yes:

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)