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Causes and risk factors for death in systemic sclerosis


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#1 Jeannie McClelland

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Posted 30 June 2010 - 03:58 PM

Causes and risk factors for death in systemic sclerosis: a study from the EULAR Scleroderma Trials and Research (EUSTAR) database. Disease-related causes, in particular pulmonary fibrosis, PAH and cardiac causes, accounted for the majority of deaths in SSc. Tyndall AJ. (PubMed) Ann rheumatologist Dis. 2010 Jun 15. (Also see: Prognosis and Mortality and Pulmonary and Cardiac)

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#2 Amanda Thorpe

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Posted 02 July 2010 - 03:36 AM

Cardiac causes eh...gee I'm so glad to be included in such an exclusive group! I'd rather be Nobby No Mates alone in the corner thanks! :emoticon-bang-head:
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#3 Jeannie McClelland

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Posted 02 July 2010 - 10:46 AM

I'm a 2 out of 3 winner in this lottery - I'd really rather have won a trip somewhere great. :lol:
I guess I ought to tell you all good-bye :bye: now and how much I've enjoyed knowing everyone :wub:, except I don't plan on 'leaving' any time soon!
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#4 Sharon T

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Posted 03 July 2010 - 08:35 AM

Oh, this was such a pleasant read :glare: I'm two out of three also. Nice to know what's probably going to kill me, but on the other hand, as Jeannie said, I don't plan on it happening any time soon! Now, if they'd just get to work and figure out how to reverse these nasty fibroids, etc.
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#5 Joelf

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Posted 04 July 2010 - 04:02 AM

Aah well, I've only got 1 out of 3 so I'm well down in the pecking order!!! ;) :lol:

I have got fibroids though, Sharon.......does that count??!! ;) :lol:

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#6 janey

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Posted 04 July 2010 - 05:39 AM

Well, I've gone from 3 of 3 to 2 of 3! Cardiac came first in 2005, followed by mild PAH and mild pulmonary fibrosis. Still have the cardiac (pacemaker and chronic atrial fibrillations), and the fibrosis has remained in lower lobes and stabilized. I can happily say that my pulmonary artery (PA) pressure has now been rated as "normal"!!!! I went on Tracleer (Bosentan) 4 years ago and apparently it did the trick on the PA pressure. I've been on half dose for 1.5 years and would like to come off it but I have 3 doctors saying "absolutely not!" I guess I'm outnumbered. We obviously all have beat the odds and will continue to do so!!! :emoticons-yes:


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