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Biomarker for Diffuse Scleroderma skin has been discovered!


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The Shingles Club!


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9 replies to this topic

#1 Joelf

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Posted 06 July 2010 - 08:36 AM

Hi All

Well, I was getting bored with the improvement in my lungs and feeling better, so I decided to come out in sympathy with Sandy D. and join the Shingles Club!! :( I have the most picturesque rash just under my bust so can't wear a bra which makes me even more flat chested than normal. :o

I thought at first that it was a sweat rash; no such luck!!! :angry: I went to see my doctor who was an absolute star and she contacted The Brompton to find out if I needed to go on IV anti viral drugs which would have necessitated an overnight hospital stay. Thankfully it can be treated orally and so I've got another lot of drugs to take (as if I don't take enough already!! ;) )

Although I don't do self pity, I'm actually feeling rather sorry for myself.:crying: The rash is quite painful and unsightly but hey, at least I've got another thing I can bore my friends with (they've all heard everything there is to hear about Scleroderma!! :rolleyes: )

There's always a bright side (said through gritted teeth!! ;) :lol: )

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#2 Shelley Ensz

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Posted 06 July 2010 - 09:16 AM

Hi Joelf,

That's a bummer about the shingles. I'm going to send you some virtual hugs, so they don't hurt!

:emoticon-hug:
Warm Hugs,

Shelley Ensz
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#3 Snowbird

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Posted 06 July 2010 - 10:55 AM

Hi Joelf

Oh, I feel so bad for you too :crying:

I agree, there is a bright, shingles are treatable! :emoticons-yes:
Sending good wishes your way!

#4 Jeannie McClelland

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Posted 06 July 2010 - 11:30 AM

Hi Joelf,

Welcome to the Shingles Club! All the best people get them (me, my husband...) :lol:

I hope they clear up quickly! I'd really list them in the not so much fun category and summer as the worst time to have them.

Best wishes and a can of calamine spray,
Jeannie McClelland
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#5 MicheleM

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Posted 06 July 2010 - 03:01 PM

Since I'm posting tonight I thought I'd join the Shingles Club too. Just finished a nasty bout and hope they stay away for a while. A line under my bust, another along the left upper hip. Valtrex didn't work so a week later we went to the original "old" medicine and it did work. Thank goodness for that! Didn't even know there was a second med they could use! So glad there was! My husband had shingles of the optic nerve about 33 years ago and was blinded by it for 12 weeks -- very nasty virus!!!! But I am in good company!!!!
Soft hugs your way,

Michele

#6 Buttons

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Posted 07 July 2010 - 08:04 AM

Hi Joelf

I know it's not very pleasant but hopefully the meds will kick in quickly for you!

I had shingles about 18 years ago all round my waist, it was so painful wearing anything so spent a week or so just wearing a nightie around the house and dressing gown.


:flowers:

get well soon Joelf.

Buttons

#7 Amanda Thorpe

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Posted 07 July 2010 - 08:20 AM

No way Jo! I am sorry and hope it clears up soon. For you :flowers: !
Amanda Thorpe
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#8 Joelf

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Posted 08 July 2010 - 12:46 AM

Hi All

Thanks so much for the kind messages. :wub:

Yesterday I was at the "death-would-be-welcome" stage but today the flu-like symptoms seem to have abated a bit and I think I shall probably live....(but I won't enjoy it!!! :emoticon-bang-head: :lol: )

The rash looks most unsightly so I don't think I'm going to be wearing my bikini top yet awhile!!! ;) :lol:

Jo Frowde
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#9 Sandy B

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Posted 08 July 2010 - 06:12 AM

Hi Joelf,

Honestly I really did not expect you to come out with shingles too in sympathy, it was very kind of you. :wacko:

The worst of the pain for me only lasted about ten or twelve days and then just abated to sensitivity where the rash is, so over the worst now. I sincerely hope you feel better soon.

Take care.

Sandy B

#10 Sweet

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Posted 09 July 2010 - 04:34 AM

Oh owie!!!!!!!

I am so sorry. I had shingles on my thigh once when I was about 18............it was the most painful thing I've ever had. Popping out two babies the natural way was cake compared to the pain I had with the shingles.

I believe my hubby just recently had a patch of it on his back a couple of months ago, but he said "nah, it doesn't hurt that bad"....so not sure, but it left scars.

Hope you are feeling a bit better by now. :flowers:
Warm and gentle hugs,

Pamela
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