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Maybe a dumb question on Raynaud's


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#21 betty32506

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Posted 04 August 2010 - 08:28 AM

Thanks for your information. I reread those references hoping to find something new.

Betty

#22 Snowbird

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Posted 04 August 2010 - 10:10 AM

I don't take any medication for mine. The doctor at work thought I should take something too which also lowers blood pressure so needless to say I pondered that thought. My family doctor and my rheumatologist both feel that I don't need to take anything until I need to (so in reading between those lines for me in particular, it is clear to me) and I'm not going to take anything until then. Meaning, although I turn white and red all the time, I am not in constant pain yet and what I do get pain wise is still bearable and manageable for me...so until that changes, I'll keep plugging along without meds like Shelley does.
Sending good wishes your way!

#23 Kamlesh

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Posted 05 August 2010 - 04:08 PM

Jeannie,

I am in California and I start taking Reynaud medication starting November when temperature start dropping below 40 and stop in April when temperature is above 70 degree F. This works very well for me. I take Nifedipine.
Kind regards,

Kamlesh


#24 Lil Dee

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Posted 05 August 2010 - 11:39 PM

I'm with the majority on this - I have figured that it is the lowering of temperature (if only by the smallest amount) that sets an attack off, as oppose to the actual temperature.

I suffer badly in supermarkets when wandering round or near the refrigerated aisles - the fresh cooked chicken counter is my favourite resting area when I get an attack, and the staff are now quite used to me hanging around without actually buying a ready-cooked chicken now!! :blush:

I also walk around (no matter what the weather) with a pair of gloves at all times of the year - even the doctors receptionist has commented on why I need them. They now have a Raynaud's poster up in the waiting room (courtesy of a local group I joined).

One of the more embarrassing situations tends to be at get-togethers. If I have to hold my drink/beer (BBQs and the like, where you mostly stand around) I always have to put my gloves on, as an attack is pretty much guaranteed - unless I'm on hot chocolate!!!

I have been offered some form of medication (can't remember what it was now), but as my doctor explained there was no guarantee it would work, and there were some pretty dodgy side-effects (I already have low blood pressure) I have decided not to take anything for now. Hopefully, I can stay that way....

#25 Snowbird

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Posted 06 August 2010 - 09:33 AM

Hey Lil Dee

You made me laugh....the thought of stalking cooked chickens to stay warm! :D

Just love that you gave them a courtesy poster too!!

I'm surprised the hot chocolate doesn't do it for you....even hot drinks set mine off too.
Sending good wishes your way!

#26 Jeannie McClelland

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Posted 06 August 2010 - 10:19 AM

Hi Betty,

The only things I take are niacin (not inositol which is the flush-free kind) and aspirin, as recommended by my rheumatologist. I have to admit that I rarely take the aspirin because I don't want to increase my tendency for bruising/bleeding. I think the niacin does help, but you ought to talk to your doctor about that and the best dosage. Too much can be pretty toxic. Here's a link to the Medline Plus page on niacin.

Mostly I try to prevent attacks and am planning on trying the ready-cooked chicken section of our local grocer's tomorrow!!

Warm hugs,
Jeannie McClelland
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#27 betty32506

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Posted 06 August 2010 - 04:27 PM

On a positive note...

I went to a new doctor and when Raynaud's was mentioned it was easy to show her. I took off one shoe and sock and said it won't take long. In less than a minute walla...there it was. We could watch the whole process.

My feet are most problematic. I always wear socks, not always wear shoes (at home of course), but got to have those socks.

Betty

#28 lizzie

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Posted 06 August 2010 - 11:12 PM

Hi all, I 'm interested by the different approaches of everyone doctors to Raynaud's prevention and the need to take medication. I was reluctant to take medication for it , but my rheumatologist takes the view that each attack causes damage and that what we can see in the hands and feet is also happening in the lungs and heart and therefore we need to reduce the numbers of attacks if at all possible. I tried and rejected 5 different medications before finding one that I can tolerate (Losartan).

Lizzie

#29 Margaret

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Posted 07 August 2010 - 08:42 AM

Hi Everyone,

I am at a loss to understand why Gareth only gets white hands/fingers when he gets into the warm shower. He likes the water on the warm/hot side so I know it's not because he's cold. You would think he'd turn white getting out of the shower, but he turns white while in the shower!!!

Take care, Everyone.
Margaret

#30 Shelley Ensz

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Posted 09 August 2010 - 04:57 AM

Hi Margaret,

I'm not surprised that he gets attacks of Raynaud's while showering.

As I understand it, any excessive temperature change can induce an attack of Raynaud's. Too hot or too cold can induce vasospasms.

I have to be careful to keep temperatures more neutral. Of course, whatever we are doing at the moment can be a clue for our triggers for Raynaud's. Attacks can be caused by cold, heat, even vibrations. A lot of construction workers get Raynaud's when they are using power tools. I even have to be careful when using electric barber clippers, taking a few short breaks is enough for me to be able to trim hair but not get a bonus attack of Raynaud's. See our section on What is Raynaud's?.
Warm Hugs,

Shelley Ensz
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