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Evidence-based management of rapidly progressing systemic sclerosis


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#1 Jeannie McClelland

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Posted 23 July 2010 - 11:35 AM

Evidence-based management of rapidly progressing systemic sclerosis. Systemic sclerosis has the highest case-specific mortality of any of the autoimmune rheumatic diseases, as well as causing major morbidity. However, this situation is changing. D. Khanna. Best Practice & Research: Clinical Rheumatology. Vol 24, Issue 3, Pp 387-400 (June 2010). (Also see: Prognosis and Mortality)

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#2 Sweet

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Posted 23 July 2010 - 01:20 PM

Always nice to see some advancement. Thanks Jeannie
Warm and gentle hugs,

Pamela
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#3 Jeannie McClelland

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Posted 23 July 2010 - 04:12 PM

Hi Pam,

Yes it is. I think we'll see advancements being made at a more rapid pace now, kind of like pulling just the right thread and and seeing the whole knot untangle. Now that researchers are seeing how so many diseases share some common traits, the advantage of research in the field of rare autoimmune disorders is propelling whole new fields of study. It used to be, and I'm sure many of us will remember it, that if you had a rare disease, nobody knew about it (well, maybe those days aren't really gone! :rolleyes:), nobody was interested in it, and worst of all, no one was willing to fund research. I'm really glad all that is changing for the better and for us, gives more hope.
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#4 Sharon T

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Posted 24 July 2010 - 02:59 PM

Wow, that's my doctor (Dinesh Khanna) who authored this article! I'd love to read the whole thing, but not sure how to get it. I've been participating in some of the studies at UCLA, so it would be interesting to see what came out of them. :)
Sharon T.

#5 Jeannie McClelland

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Posted 25 July 2010 - 03:19 AM

Hi Sharon,

What I'd do is ask my library to see if they could get a copy of the journal it was published in. Another thing I've done is to ask my doctor if I could have a reprint of the article. (He was flattered and happy to send me a copy.) And a third suggestion is that most teaching hospitals have their own library and patients are allowed to use them, not on a check-out basis, but you can read and often copy things.

Warm regards,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#6 Sharon T

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Posted 26 July 2010 - 11:12 AM

thanks for the tips, Jeannie. I'll try them all until one of them succeeds!
Sharon T.