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Biomarker for Diffuse Scleroderma skin has been discovered!


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Point Pleasant’s Paulmenn is a survivor who now makes other patients’ dreams come true.


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#1 janey

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Posted 27 July 2010 - 03:15 PM

Point Pleasant’s Paulmenn is a survivor who now makes other patients’ dreams come true. (pdf link)

Janet L. Paulmenn recognizes the need to help chronically ill children, as she herself has battled a serious disease. As she continued her own battle against diffuse scleroderma, Mrs. Paulmenn decided that she wanted to help others who were also fighting serious illness, and that choice led to a social gathering. This is a about Sclero Forums member "miocean." PDF file of newspaper; click on People or go to page 23. The Ocean Star. 07/23/10.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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#2 Jeannie McClelland

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Posted 28 July 2010 - 01:35 AM

This is a truly great story! Janet, thanks for being such a good person. There aren't enough around like you. Also thanks on behalf of all of us with scleroderma for giving such a good picture of what it is like. You'll have made many, many more people aware of the disease who weren't before and that's also important.

Nice to see a happy, healthy you on the beach by 'your' ocean!

Warm hugs,
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#3 Amanda Thorpe

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Posted 28 July 2010 - 04:01 AM

How amazing! What a way to use your own pain for others' gain! Way to go Janet!

Take care.
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#4 Joelf

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Posted 28 July 2010 - 04:48 AM

What a lovely story, Janet; it makes me feel very humble!! :)

May all the children that you help have their 'Dreams Come True!!' :emoticons-yes:

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#5 LisaBulman

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Posted 28 July 2010 - 08:04 AM

What a great story!! The world needs a few more of you in it! Keep up the fantastic work!

The picture in the paper was fabulous! :D

Hugs,
Lisa
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#6 janey

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Posted 28 July 2010 - 09:07 AM

Janet,
You are one awesome woman!!!!! Thanks for being such an inspiration and for all your do for others! Beautiful inside and out.
Janey Willis
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#7 Sweet

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Posted 28 July 2010 - 01:40 PM

Awww this is so great!
Warm and gentle hugs,

Pamela
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#8 miocean

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Posted 28 July 2010 - 05:15 PM

Thank you to the Sclero forum for posting this and to all my forum friends. I've said this before and I'll probably say it many times again, but I don't know what I would do without you. I've asked my sclero dr. about children with it and she said it is rare in children yet I read posts from parents about their children. I have looked for pediatric dialysis patients in this area but haven't found any yet. I guess that is a good thing. I just know how hard both things are and can't imagine going through it as a child. We have our first dream child now. She is 17 and when she was 12 got a tumor on her elbow. She just had her 8th surgery on it, fortunately it is benign. She wants to meet the Jonas Brothers. Her mother already bought tickets for her and two friends so we are getting them a limo, buying her a new outfit, and somehow are getting them to meet with her. They are from this area and do a lot for charity so we have high hopes of it all coming together.

It's so nice to have a purpose once again.

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#9 warmheart

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Posted 31 July 2010 - 06:06 PM

Hi Janet,

What an awesome article! And you are so awesome--you totally rock. It was great to read about the change your friends see since the transplant. :emoticons-yes:

Hugs,

warmheart