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Aching legs

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#1 miocean


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Posted 31 July 2010 - 05:52 AM

For the past few weeks my legs have ached me. They hurt whether I am sitting or laying down. They are a little better if I an walking, which I do very slowly. I am more active since the transplant where before it I sat around most of the time. I am not doing that much now, just trying to walk short distances. It began with my legs hurting in the late afternoon but now is almost all the time. I don't know if it is the increase in activity, scleroderma, or perhaps even restless leg syndrome. I have been taking Tylenol, the only OTC drug I can take without permission from my doctor. I don 't even know which doctor to see about it. All meds have to be approved by the nephrologist, I see the Sclero specialist in September and she is not that responsive by phone And my general practitioner would just give me a prescription that would have to be approved. Any one else with achy legs or R L S? Any advice is appreciated.


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#2 warmheart


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Posted 31 July 2010 - 06:46 PM

Hi miocean,

Well, I'm not a doctor, but could it possibly be because you're slowly getting your leg muscles back in shape? Just a thought; could be totally wrong. Maybe the best place to start is with your primary care doctor, because that way he can coordinate the communication between all the doctors.

Hope your legs are feeling better soon! Wish I could just wave a magic wand for you. :fairy:



#3 erika


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Posted 01 August 2010 - 09:23 AM

Hello Miocean,

My legs hurt from time to time. Then the legs improve but my hands hurt and feel heavy (mostly elbow area). My back and sitting part of the body hurt almost always. It is not the pain which I cannot endure but it annoys. The best medicine for that is massage. I go to 1 hour massage once in three weeks. Should do that more often. Should not save my time and money on that.



#4 Lucy H

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Posted 20 September 2010 - 12:48 PM

Hi Miocean,

Yes, I too have pain in my thighs. It is a deep ache that feel like it is in the muscle. It feels better when I move around and walk but as soon as I sit again the deep ache returns. Weird!! I was tested for polymiosytis but my blood was negative. Wish I could help.


#5 Shelley Ensz

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Posted 20 September 2010 - 01:53 PM

Hi Miocean,

Muscle pain might be a side effect of some of your medications, including your transplant meds, so if I were you, I'd start with my transplant coordinator, and ask them what to do. My reasoning is that you couldn't make much, if any, progress on any other front, until the medication issue is ruled out.

And I know what you mean, sometimes it gets very difficult to figure out which end of the medical system to start tugging on, when a new issue develops.
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
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