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My father suffered Scleroderma


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8 replies to this topic

#1 Roslan

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Posted 31 July 2010 - 06:03 PM

Hello every body, I'm Roslan from Malaysia. I want to share about Scleroderma. My father has been almost four years of suffering from this Scleroderma. But in Malaysia no doctor that can be healing or giving any medication to reduce the pressure of pain experienced for my father. I hope someone can give an opinion about this disease. Thank you. Help me please. Sorry because my english not well. :)

#2 Jeannie McClelland

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Posted 31 July 2010 - 11:59 PM

Hi Roslan,

Mengalu-alukan! Welcome to the Forums. I'm sorry your father is suffering from scleroderma. It is very hard when someone you love has a disease. I hope we can help with some information.

Your English is just fine, but as it happens we do have some information in Malay. Here is a page with basic facts translated to Malay. I don't know if you and your father could travel to Australia, but here is a list of scleroderma experts in Australia. You might also try contacting the Arthritis Foundation of Malaysia for more information.

Best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#3 Roslan

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Posted 02 August 2010 - 12:34 AM

Thanks so much Jeannie McClelland. I am very happy that you have time to reply here. Just now, I try looking for more money and going to Australia with my father. Thanks so much again. :)

#4 Shelley Ensz

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Posted 02 August 2010 - 02:12 AM

Dear Roslan,

Welcome to Sclero Forums! I'm sorry your father has scleroderma and hope that you will be able to find a scleroderma expert to help him. Remember that just going to Australia for medical care isn't helpful in itself, that it is further necessary to see an Australian Scleroderma Expert.

Please give your father an extra warm hug, just from me! :emoticon-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Amanda Thorpe

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Posted 02 August 2010 - 05:41 AM

Hello Roslan

Welcome to the forum and I hope your father is soon able to benefit from seeing a scleroderma expert.

Take care and keep posting.
Amanda Thorpe
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#6 Sweet

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Posted 03 August 2010 - 12:05 PM

Dear Roslan,

Welcome! :flowers:
Really glad you have joined us, but I'm so sorry to hear about your father. It's so sweet you are finding ways to help him. Go ahead and ask any questions.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 Roslan

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Posted 04 August 2010 - 08:11 PM

thank's all for giving me support and opinions. thanks so much.

#8 Jeannie McClelland

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Posted 05 August 2010 - 02:16 AM

You are welcome, Roslan. Post anytime and as often as you like, even if it is just to chat. It really helps to have people who understand to talk to.

Best wishes to you and your father,
Jeannie McClelland
(Retired) ISN Director of Support Services
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#9 Snowbird

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Posted 05 August 2010 - 09:12 AM

Hi Roslan

It's so good that you are finding ways to help your dad. He must be very proud of you!

I'm sure you'll find lots of good information here. It is a great place to ask questions. Your English is good, so don't be shy!
Sending good wishes your way!