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Palms tight and shiny


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#1 mando621

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Posted 02 August 2010 - 01:25 AM

Hi,

I was wondering if anyone else notices their palms getting smoother? Shiny and tight? The skin on my palms is tight and shiny and when I flatten out my hand I can feel the skin pulling. I also have shiny skin on the backs of my fingers especially toward the nail end. The skin doesn't feel thicker, it is just smooth and shiny. The rheumatologist I've been seeing doesn't think that is a symptom.

I've been having lots of trouble with the joints of my fingers and toes, especially the big toes and my thumbs. I don't see a rheumatologist until mid-September, when I have an appointment to see a new rheumatologist in the HMO. The HMO denied a referral out of the plan to see a different research rheumatologist at the university hospital, so I guess I'll see what this new doctor has to say.

Mando.

#2 Shelley Ensz

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Posted 02 August 2010 - 02:32 AM

Hi Mando,

Have your symptoms been stable, or are they getting significantly worse, rapidly? If they are fairly stable, odds are good that you'll be fine until your next rheumatology appointment. But if you have any questions in the meantime, or if anything gets worse, be sure to see your primary care doctor. As you know, many things might seem like scleroderma without actually being scleroderma, but often only time will tell what's what.

Do you have any fun things planned to celebrate the end of summer? Even after all these years, it's hard for me to believe how quickly the seasons change in the Midwest...so quickly, so fast, and so drastic. It seems I just begin to get the general idea that it's one season and adjust my recipes and wardrobe accordingly, but with such a lag that within a few weeks, it is yet another turn of the climate. :wacko:
Warm Hugs,

Shelley Ensz
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#3 mando621

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Posted 02 August 2010 - 03:19 AM

Hi Shelley,

I would say things are going pretty much the same, other than the joint pain. I wouldn't be able to get in to my primary any faster and I'm not sure she would be any help.

Well, the summer is going way too fast. My daughter is going back up to Minneapolis Aug. 26, and that doesn't seem that far off. We were just discussing how long she is going to stay at her summer job, and get her room totally cleaned out because we are going to be hosting an exchange student during the winter.

The heat and the humidity are terrible today, and the mosquitoes are so bad I can hardly go out without numerous bites. I got one on the palm of my hand yesterday. I woke up a couple times in the night with hand pain in my index fingers. I also found my hand tightly curled and that hurt like the dickens to get it straightened out. I did see a physical therapist and she gave me hand exercises to be doing to keep the fingers limber.

Mando.

#4 Piper

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Posted 02 August 2010 - 05:47 AM

Hi Mando,

Your post caught my eye as I've been having the same tightness and drawing in of my palms for a couple of years now. My G.P told me I should stretch them and I think this has helped them from getting worse.

I do not have a diagnosis of scleroderma however I share many symptoms including severe GERD, Raynaud's, arthritis, fatigue and dry eyes and mouth. I have also had a positive ANA for the past 10 years with a nucleolar pattern in the past couple of years, low WBC and higher creatinine.

Whatever is causing mine is happening very, very slowly and I'm thankful for that.

Hugs, Piper

#5 Jeannie McClelland

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Posted 02 August 2010 - 12:36 PM

Hi Mando,

Yes to both the tighter and shinier palms and strangely enough, the soles of my feet are also doing that. The skin, as you say, doesn't feel thicker. It sort of feels like the skin had been removed and replaced with something like parchment paper. Sorry for the graphic~:barf:

I've increased the amount of stretching exercises I do with my hands and have added some for my feet. I'm being even more careful about Raynaud's and about keeping my skin well lubricated. Might not help, but it won't hurt.

One thing about scleroderma, it can always come up with something new and weird. Have a great rest of the summer. We have the mozzies in swarms too at the moment. Even the dogs don't want to stay out long. I'm looking forward to the autumn!

Warm hugs,
Jeannie McClelland
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#6 mando621

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Posted 04 August 2010 - 04:52 AM

Hi Jeannie,

Me too with the feet. The skin is tight and it sometimes feels funny if I try arching my foot, like the skin won't crease like it should.

Well, I'm trying to finish up a knitted tunic, I'm working on the back. I can't knit for too long at a time because my wrist and thumb start acting up. It is sleeveless, but I think I bought enough yarn to make the sleeves, so I'll see how it goes when I get the back and front put together.

As funny as it is, I'm looking forward to fall temperatures. I like the temps to be in the 70's and today is humid and high 80's.

The summer is going fast, too much going on. I'm going to be teaching our youngest to drive. Here comes more white hair!!

Mando.

#7 mando621

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Posted 04 August 2010 - 04:58 AM

Hi Piper,

I'm in the same boat with you about diagnosis too. I have esophageal issues, Raynaud's, dry eye, fatigue, joint pain and swelling, abnormal nail capillaries, but no clear diagnosis as far as I know. Things are moving slow with me also, so that is the good thing. I think I see facial changes and lately my jaw has been very fatigued when chewing. I try not to dwell on these issues, but I'm sure I'm also dealing with some depression at times as a result of the health problems and the not knowing.

Mando.

#8 Piper

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Posted 05 August 2010 - 06:25 AM

Hi Mando, I feel for you hon. Not having a diagnosis is one of the hardest positions to be in and I'm sure many on here have been in the same position at one time or another. I find myself depressed at times also especially when I start thinking it's all in my head. My doctor reassured me that there IS something wrong and called it a grumbling or smoldering disease. My worst problem lately is stamina. :(
It's nice to know that you're not the only one in this position.

Hugs, Piper :flowers:

#9 kipcakes

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Posted 05 August 2010 - 08:55 AM

HI all, New member here. Just joined today. I was diagnosed with sclerderma about 10 years ago, however, besides fatigue and GERD really no problems until this year. Now they tell me mixed connective tissue disease. The pain travels, back, hands arms and feet. My hands and fingers are tight and started to get shiny. Major problem is stamina, pain, and bowel incontinence. I also get a sharp burning pain in the top of my foot that comes out of nowhere, intensifies and goes away. Only lasts a few seconds but believe me that's enough. Anyone else have this problem or symptom. I feel for you all, can understand the not knowing part, very furstrating, but will take the slow process and be happy with it. Hugs to all

#10 Amanda Thorpe

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Posted 05 August 2010 - 09:23 AM

Hello Kipcakes

Welcome to the forum and congratulations on living with scleroderma for 10 years, I'm only into year 3.

Stamina...what stamina! Fatigue, fatigue, fatigue and again...fatigue! It's something familiar to all of us with scleroderma and something I have had a little bit to much of today, can you tell?

I get 3 types of pain in my feet, mechanical which is where it hurts to stand/walk, skin pain where the skin stings like when you're scalded with hot water and nerve pain which is random electric type jolts of pain in response to well nothing! Oh yeah and of late achey type pain but then scleroderma is a rheumatic pain so I guess that's to be expected. I have discussed the various types of pain with my rheumatologist and if you haven't yet it would be an idea to.

I can't comment on the bowel incontinence because I don't have this problem, I can only imagine it must be very difficult to deal with. I do know others on the forum have struggled with this problem and some have had successful surgery for it, no doubt they will join in.

Take care and keep posting.
Amanda Thorpe
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#11 Jeannie McClelland

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Posted 05 August 2010 - 10:14 AM

Hi Kipcakes,

Welcome to the Forum! Ten years, eh? That's great - I'll be 4 years in October and am shooting for 30, of course I'll be in my 90's then.:lol:

I get foot problems too, much the same as Amanda has described. The one that drives me most crazy is a sharp, burning pain under the arch of my foot, feels a bit like a ligament or tendon problem. We're not even going to go into the cold feet problem.

Hope you'll post often and let us get to know you.

Best wishes,
Jeannie McClelland
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#12 kipcakes

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Posted 05 August 2010 - 02:53 PM

Finally someone who knows what I am talking about. Yes the electricity pain. I describe it as sticking a hot poker into my foot. My rheumatologist never heard of it nor the incontinence. Maybe I should find a new doctor. Anyhow, dealing with it, do we have a choice? I am taking plaquenil and muscle relaxer to help with the rheumatoid part. Not on it long enough to see much difference. Anyone else taking same meds with good results? Take care everyone. Seems like a great group. People I can talk to. Have a good night.

#13 Amanda Thorpe

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Posted 07 August 2010 - 01:50 AM

Hello Kipcakes

If you're seeing a rheumatologist who has no knowledge of some of the scleroderma symptoms and therefore the treatments, have you considered seeing a scleroderma expert?

Take care.
Amanda Thorpe
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ISN Sclero Forums Support Specialist for UK Scleroderma

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