Jump to content


Did you know that exercise increases inflammation in systemic sclerosis?


Photo

Lung Clearance Scan


  • Please log in to reply
19 replies to this topic

#1 Helen

Helen

    Silver Member

  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 05 August 2010 - 10:29 PM

Hi Everyone

I have to have a Lung Clearance Scan where you breathe in a small dose of radioactivity to assess clearance of the lungs. I was wondering if anyone has had this and do you feel okay after it?

Thanks,

Helen

#2 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 06 August 2010 - 05:45 AM

Hello Helen

Well I googled a plenty and found some information which said that no preparation is required, there's no after effects so you can drive home and the test lasts about 1 hour and 15 minutes. Basically you breathe in a small amount of radioactive gas, lie on a bed breathing through a tube in your mouth with a peg on your nose whilst a camera takes picturs of your lungs. All you have to do is lie still so I imagine it will be a really boring experience!

I hope this helps and take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#3 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 06 August 2010 - 09:27 AM

Hi Helen

Not I, I've only done PFT's.
Sending good wishes your way!

#4 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 06 August 2010 - 10:07 AM

Hi Helen,

I had a different test where the radioactive isotope was delivered by IV, but you were still flat on your back for a long time. I think the possible after-effects could be a bit of dizziness from getting up from a lying-down position. None of the sites I looked at for Lung Clearance Scan had anything listed as an adverse effect of the test and the only counter-indication was pregnancy.

Good luck; let us know how it goes!
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 06 August 2010 - 11:05 AM

I have never heard of this in all the years of having sclero. It must be fairly rare?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 06 August 2010 - 12:01 PM

Thanks for your replies. Because my lung function tests show that my lungs are getting a little worse each year my doctor wants to try a different medication, but wanted this test done first. Not looking forward to lying on my back for over an hour and trying to keep still, that will be the hard part. At least there are no needles involved. :VeryHappy:

#7 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 07 August 2010 - 08:15 AM

Hi Helen

I also have had innumerable lung function tests and just about every lung test known to man, but have never had a lung clearance test (it must be the only lung test I haven't had!!! ;) )

However a friend of mine had one for a condition completely unrelated to Sclero and suffered no ill effects afterward. :)

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#8 Lauriejill

Lauriejill

    Senior Bronze Member

  • Members
  • PipPipPip
  • 31 posts
  • Location:Encinitas, California

Posted 08 August 2010 - 08:05 AM

Helen,

Long ago I was a Nuclear Med. Tech. and we did what was called "lung scans" that sound exactly like what you described. The test that I did involved breathing a radioactive gas and being imaged sitting up (if the patient could do so). There is no prep and no side effects. It has been 20 years so they may have renamed the study and do it a little differently. Just thought I would add my 2 cents. Good luck

I had lowering PFT's and was put on cyclophosphamide IV once a month for 6 months and it helped my lungs. I have fibrosis.

Laurie jill



#9 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 08 August 2010 - 02:39 PM

Jeannie, the only counter indications was pregnancy. I for sure don't want that test. That's all I would need at my age was a baby. Ha!
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#10 Lil Dee

Lil Dee

    Senior Bronze Member

  • Members
  • PipPipPip
  • 40 posts
  • Location:Manchester UK

Posted 09 August 2010 - 01:41 AM

:jump-for-joy: See, now this is the type of test I can cope with. My fatigue level at the moment is unrelenting. They'd have to wake me up when it had finished, I tell ya!!

Seriously, looking at the comments above, it looks like it's quite a simple test. Which can only be good news :jump-for-joy: Just remember to sit up s-l-o-w-l-y, so you don't go all dizzy on them!!

Wishing you luck,

LD

#11 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 09 August 2010 - 09:50 PM

Thanks everyone, I will let you know how I go. :thank-you:

#12 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 12 August 2010 - 08:52 AM

Helen, have you had your lung scan yet? If so, how did it go?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#13 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 12 August 2010 - 09:26 PM

Hi Shelley

I don't have it till next Wednesday, then have to see specialist on Thursday to get the results. Have to travel 700kms to have it. I won't get back till Friday, so will let you know how I went then.

Helen

#14 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 13 August 2010 - 08:24 PM

Yeah, I live in Rockhampton and have to travel to Brisbane...at least I will get to do some shopping :VeryHappy:

#15 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Auckland, New Zealand

Posted 14 August 2010 - 01:34 PM

Hi Helen,
I don't see that because you have to travel to Brisbane for your test as a problem. What other people may not realize is that you live in ETERNAL SUMMER!!

We have just come home from 10 days in Cairns and Port Douglas and it was bliss for my fingers and toes to get away from the (relative) cold of Auckland. Mind you, I don't know if I could handle the temperature there in January and February!!

Most of the year I am just plain ENVIOUS!!

Best wishes for your test, from wet and windy Auckland.

Judy T

#16 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 15 August 2010 - 01:16 AM

Hi Judy

Yes, I am very lucky. I can't imagine how people can live in cold countries with Raynauds. It does get very hot in summer, which I find as hard to take as the cold for some reason...it seems like my temperature control is broken. On the bright side I have air-conditioning and I live in a lifestyle resort for over 50's and our house is across the road from a beautiful pool, so it does make life a little easier.

Glad you enjoyed sunny Queensland.

Helen

#17 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 08 September 2010 - 06:16 AM

Helen, how did things go with your lung clearance scan, and how would you say the test itself was?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#18 Helen

Helen

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 08 September 2010 - 06:15 PM

Hi Shelley,

The results showed normal, so that was good news. The test was the easiest one I have ever had. Had to lay on a table with a wedge under my knees for comfort, then they put a heated blanket over me. I had to put my mouth over a tube and breathe normally for about 3 minutes till I had enough radioactive gas in my lungs...had no taste. Then they put a surgical mask on me so I didn't contaminate the air and I just had to lie there for 30 minutes. The machine continually took ultrasound pictures from under the bed. I was so cosy and tired from the trip I could have stayed there for hours.

The technicians said they rarely do this test. I didn't have any after effects.

The doctor wants me to go back in 3 months for another Lung Function test.

Hope you are keeping well.

Helen

#19 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 09 September 2010 - 03:15 AM

Good news, Helen! :happy-day:
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#20 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 10 September 2010 - 04:06 AM

Hi Helen,

That test sounds truly delightful. I'm glad your results on it were good, too.

Thanks to your depiction of it, I'm sure all of us will look forward to getting a lung clearance scan, if we ever need one.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.