Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Bowel Incontinence

  • Please log in to reply
21 replies to this topic

#21 bendofislands


    Bronze Member

  • Members
  • PipPip
  • 12 posts

Posted 28 March 2011 - 08:31 PM

I will look forward to the leaflet. Just having other people talk about it is helpful. It took me about 6 years to even mention it to the Consultant at London hospital, and only when I saw the female. I work so hard on trying to sound well and positive when I make a hospital visit that I seldom mention these 'small' inconveniences. Now that I realise that many of these are signs of Scleroderma developing I know I MUST talk about them when I see medical people. I see the specialist nurse in Melbourne hospital deals with bowel incontinence (via a link on this Forum) and I rang her yesterday and will see her about it in a month with my next hospital appointment. Again, thanks to you all for giving me confidence to do this.

#22 red


    Senior Bronze Member

  • Members
  • PipPipPip
  • 96 posts
  • Location:Upstate New York State

Posted 29 March 2011 - 06:24 AM

At my first consultation with my rheumatologist, he asked me directly about bowel symptoms, urgency and incontinence. I blushed my way through the entire consult, but honestly asked his questions, as yes, I had been experiencing lots of "accidents" of not getting to the bathroom quickly enough. Still took me a couple years to get to the rectal specialist he recommended :P

But I finally did, and am having some improvement with added fiber, a change of one of my medicines to lessen diarrhea, and biofeedback therapy.

There are treatments out there, don't wait any longer!!

Good luck to you!