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CT Scan

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#1 Sandy B

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Posted 15 August 2010 - 06:16 AM


Went back to my general practitioner on Friday re results of recent CT Scan. Scan shows apical scarring possibly due to previous infection of T.B.on lungs (I'm sure I would have remembered such an event!!!) a cyst on the liver and adrenal hyperplasia. Not bothered about the cyst, but concerned about the hyperplasia. My doctor didn't say much about this as we are awaiting to hear about the possibility of bone marrow transplant, so I guess he feels this treatment would encompass all of my other health problems. I have done a little research since Friday into adrenal hyperplasia and it seems to be linked with polyglandular autoimmune syndrome and multiple autoimmune syndrome, both conditions as the names suggest are autoimmune disorders and generally involve three or more autoimmune disorders and as I have pernicious anaemia and hypothyroidism which are symptoms of both as well as the systemic sclerosis, I feel it needs looking into. As I understand it from what I have read so far, both conditions are related to multiple endocrine organ failure, albeit it very slow and chronic, but could ultimately lead to Addisons disease which can potentially be very serious. My doctor has now gone away on holiday for two weeks, so I would appreciate any input on this. Does anyone here have any experience of these conditions or any ideas at all.

I know nothing dramatic is likely to happen in the next two weeks, but it would be good to hear from anyone managing with this and what tests and medications you take to keep it in control.

Sandy B

#2 Jeannie McClelland

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Posted 15 August 2010 - 07:40 AM

Hi Sandy,

Are you seeing a specialist for any of this? I would think your general practitioner might want to have you see an endocrinologist and I know referrals can take forever. It all sounds rather frightening.

I can't add anything from personal experience, but we do have a page on Multiple Autoimmune Syndrome.

About all I can give you are my very best wishes. Please keep posting and let us know how you get on. I'll keep you in my thoughts.
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#3 Amanda Thorpe

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Posted 15 August 2010 - 09:08 AM

Hello Sandy

That's a lot to take in, the timing of your doctor's absence is a bit unfortunate! Please be the first in the surgery when they return.

I had a look at a website for an Addisons's Disease self help group, and it said that with the treatment of steroids Addison's can be managed and life can continue mch as before. Of course I don't know how this would fit in with your other issues.

Please let us know what you find out and how you get on.

Take care and keep posting.
Amanda Thorpe
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#4 judyt


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Posted 16 August 2010 - 03:09 PM

Hi Sandy,
Just want to tell you that I have a friend here in Auckland, NZ who has Addisons and leads a full and interesting life. When I say interesting I mean it!! right now she and her husband are in Manila in the Philippines working. She also has Albinism (lack of pigment in her skin and very pale eyes) AND is legally blind - and we think we have problems!! I have known her most of her life because she grew up in our neighbourhood but she went to a school for the blind.
I met her again when I joined a - wait for it - Patchwork Group. She comes along every week, when they are not away in some far away part of the world, and produces some very beautiful quilts.

So as is often said on this Forum - it is all about attitude. We all have our bad days and frightening thoughts, but in fact we are all so lucky that medical science has moved on far enough to allow us to do all sorts of wonderful and interesting things in spite of our afflictions.

I truly hope you don't develop any more nasties, and send you warm hugs from the bottom of the world.