Visit to general practitioner doctor (private practice)
Posted 19 August 2010 - 09:31 AM
He performed a new test on me. He took a drop of my blood and put it on the microscope. The contents were visible on a big PC monitor: he explained that my red blood cells are in a complete mess. Instead of floating freely in a liquid they are linked in the groups, chains or grapes structures. Instead of being nice round circles they are different shapes and sizes. This is the reason why my sedimentation level is below normal levels (only 1). I knew that I had thalassemia (genetic defect results in reduced rate of synthesis of one of the globin chains that make up hemoglobin) in which red blood cells are smaller than usual but I had never problems with that because their number is high (more than 5,5 million)- autocompensation.
The doctor said that the reason for this behaviour of the red blood cells (grouping and strange shapes) is coming from the leaking intestines (inflamed) which "poison" the blood due to food intolerance imbalance. This strongly affects the immune system which becomes hyperactive and causes allergies and autoimmune disorders. He said that he has read an article of some professor (I forgot the name) who wrote that all collagenosis (?) originate from colon disorders and that the main cause of disorders is wheat.
Another thing he has found was a colony of fungus Mucor Racemosus which also does its part in damage. This fungus were visible as white spots like pins heads.
To improve the damage he has prescribed me a diet with some medicine to treat the fungus and to assist the liver and kidneys to recover. The treatment will last 6 weeks and I will start it at the beginning of September.
I hope for improvements of my allergy symptoms (which have again worsened a bit) and will see how my sclero skin, muscles, tendons and joints will behave.
Meanwhile I greet you all sending hugs around the globe.
Posted 19 August 2010 - 11:34 AM
I'm sorry you are having more problems, you certainly have a lot going on. Here's hoping you get some relief soon!
How is your doctor going to treat the thalassemia? Or does it need treatment at this point?
I didn't know until this year how common fungal infections (other than of the skin) were, nor how many different kinds there are. I also didn't know that a person could develop an allergy to a fungus, but found out the hard way when I developed an allergy to one myself. So of course the treatment was to first treat the fungus and then the allergy needed only minor steroid treatment. I hope you respond as well as I did.
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Posted 19 August 2010 - 11:36 AM
Is he saying that you have celiac disease.....allergy to wheat and gluten products? If so, then, yes, untreated CD can cause havoc on the intestinal/immune system. Also.....he saw fungus on your blood cells?!?!? Wouldn't that make you very sick, systemic wise? I hope the treatment works.
Take care, Everyone.
Posted 19 August 2010 - 11:48 PM
Read your post with great interest, it sort of backs up a few ideas that I have had. Last year my sclerosis kicked in big time, despite having been diagnosed with it since the mid 1990's. I have had intestinal problems for over ten years, but they got dramatically worse last year and for the first time ever I was also suffering from chronic fatigue and myalgia. After months of this and being pushed from pillar to post I was finally prescribed antibiotics on the basis I might have S.I.B.O.(Small Intestinal Bacterial Overgrowth) within about two to three weeks of having the antibiotics my chronic fatigue and myalgia improved. Up until this point, I had felt very ill indeed, I often complained to my daughter as feeling like a `toxic waste dump'. Since then, after many investigations this year, it has been confirmed that I do have areas in the small intestine that do not work, so food just basically sits there and rots, hence the bacterial overgrowth. Antibiotics have greatly improved the S.I.B.O. and two weeks ago it was decided I would be on them continuously, so I am hoping there is still room for further improvement. I have no doubts in my mind that the S.I.B.O. was responsible for how poorly I felt and also that food intolerances do have some role in all of this, after all we know how we feel. So the idea that your system can almost be poisoned from leakage makes perfect sense to me now after reading your post, because that is exactly how I felt.
Hooray and thankyou for he[ping me make some sort of sense for one of the many problems I have had. I was told by the first rheumatologist I saw (with regards to the chronic fatigue) that everybody feels a little tired sometimes and no doubt after clinic that morning he popped out for a game of golf while I collapsed on the sofa with my fatigue and aches and pains!!!
Posted 21 August 2010 - 10:21 PM
Jeannie, my thalasemmia will not be treated at this point since it is minor form (not serious) and my iron levels are normal. I have to be carefull not to take iron supplements since I can get surplus of iron which is not good for the liver.
Margaret, no I do not have celiac disease, I tolerate gluten, but do not tolerate wheat, cows milk and yeast. And fungus is not on my blood cells but they are white rice spots floating in the blood: it was visible as galaxies seen through Hubble telescope.
Sandy, all what you talk about is similar to my symptoms. I was in a much worse shape 2-3 years ago when I did not know about this intolerance. I was wondering if it would be good for you to take probiotics - good bacteria to keep place during digestion and to prevent bad bacteria to colonise. Can't do any harm, can they?
Take care and have a happy day.