Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Spoons


  • Please log in to reply
5 replies to this topic

#1 Sarah_Smith

Sarah_Smith

    Newbie

  • Members
  • Pip
  • 7 posts
  • Location:Oklahoma

Posted 30 August 2010 - 06:08 AM

I don't know if any of you have ever read this story, but it is really good. And I also believe it is a good way of explaining what its like to live with an autoimmune disorder.

But You Don't Look Sick: The Spoon Theory

#2 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 31 August 2010 - 08:53 AM

Sarah_Smith, we post the Spoon Theory story a couple times a year.

It is great to help you explain to others how you are feeling and your friends know when you say that today you only have two spoon left, they know what type of day you are having.
Welcome to our many new members. This story does get posted a couple times a year. I hope everyone that has ever read it has had the opportunity to show it to others. Or at least it has helped them explain to others how they feel.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#3 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 31 August 2010 - 10:38 AM

I really like this article, not just for explaining to others that today might be not-so-good and who knows what tomorrow will be like, could be great, but for reminding myself of what it's like.

I get totally frustrated that I can't plan ahead for things like I used to do. Next Thursday for digging stumps? Yeah, sure, see you then. :temper-tantrum:

I was, of course, being completely silly about the stumps, but how about knowing that some days you are going to run out of spoons and won't even be able to come up with just one more to eat that chocolate mousse? I think accepting it yourself is very hard. Sometimes explaining it to others is nigh onto impossible. The Spoon Theory seems to work with everybody, even me!
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#4 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,893 posts

Posted 31 August 2010 - 11:41 AM

I've been using it for years. I pass it out all the time, it's so wonderful!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 JaneLesley

JaneLesley

    Bronze Member

  • Members
  • PipPip
  • 27 posts

Posted 31 August 2010 - 08:51 PM

Hello,

Thank you so much for posting the spoons article. I gave a copy to my close work colleagues yesterday - we are already talking in terms of spoons. I think this is going to be really helpful for the future when I am trying to signal I need some help without making a great fuss in front of others at work. "I've lost all my spoons" is going to sound a lot better than "I am about to collapse to the floor" especially when we have visitors in the office!!

Thank you once again.

Best wishes

Jane

#6 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 01 September 2010 - 03:14 AM

Oh Sarah, don't ever say marbles instead of spoons! :lol:

Warm hugs,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network