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#1 SuzanneL



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Posted 01 September 2010 - 02:08 PM

Does anyone's doctor recommend supplements to fight inflammation? I have read about a lot of different approaches ...

#2 Shelley Ensz

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Posted 02 September 2010 - 02:50 AM

Hi SuzanneL,

Thanks for asking, that's always a good question.

We have a whole section on Alternative Therapies that you may be interested in, including a whole Supplement Guide for Scleroderma. The most important thing to know about supplements and scleroderma is that the immune system does not need to be improved in scleroderma, because it is already overactive.

We also have Forum Guidelines for Alternative Therapies because our forum is a frequent target for herbal salespersons. Our primary recommendation is that people consult a recognized scleroderma expert for quality advice in this area since many otherwise helpful vitamins and herbs can sometimes be detrimental to scleroderma or adversely react with medications, and what's good for some of us might be awful for others, so this is not a do-it-yourself project anymore, like it probably was when we were perfectly healthy.
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 janey


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Posted 02 September 2010 - 02:57 AM

Please consult your doctor AND your pharmacist about any supplements. It's just as easy to overdose on a supplement as it is to overdose on prescription drugs. Also, there are supplements that interfere with the absorption of prescription drugs. For example, my rheumatologist prescribed iron, but failed to tell me that iron prevents the absorption of Bosentan (which I am on). My pharmacist informed me of that, which was good since, at the time, I was taking the iron and the Bosentan at the same time of day.
Janey Willis
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International Scleroderma Network (ISN)