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Surgery for Raynauds?


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9 replies to this topic

#1 SaraM

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Posted 05 September 2010 - 01:09 PM

Hello, all. I have heard that there is a surgery called a "sympathectomy" that has been used with some success to reduce symptoms of Raynauds phenomenon. Does anyone have any more information?

Sara

#2 Sweet

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Posted 05 September 2010 - 01:43 PM

Hi Sara,

Here is some information on Digital Sympathectomy. Have a great day! :flowers:
Warm and gentle hugs,

Pamela
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#3 Sweet

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Posted 05 September 2010 - 01:45 PM

Let me know if that link worked for you. I tried it and it didn't work for me, but if I cut and pasted it into my browser it did. I might have my security settings too high.
Warm and gentle hugs,

Pamela
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#4 debonair susie

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Posted 05 September 2010 - 02:45 PM

That's probably what is happening, Sweet Pam, so I imagine my security to be as yours is.
Hope you are doing well, my friend :bye:
Special Hugs,

Susie Kraft
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#5 Jeannie McClelland

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Posted 06 September 2010 - 05:25 AM

Hi Ladies,

The original link was a bad one - not sure why it didn't go where it should have (just stubborn maybe), so I have replaced it with one that does. Those are research articles. The one that I think was intended should have gone to the photo repository on sympathectomy.

:emoticon-bang-head: Gotta love technology~ Sometimes it really reminds me of a soup sandwich.
Jeannie McClelland
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#6 Sweet

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Posted 06 September 2010 - 11:45 AM

Thanks Jeannie!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 SaraM

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Posted 11 September 2010 - 11:28 AM

Thanks so much. :thank-you:

#8 KarenL

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Posted 13 September 2010 - 08:36 AM

Hi,

I have had a thoracic sympathectomy, actually two or bi-lateral. What they do is go in under your arm with a small scope and camera. They cauterize a nerve that is responsible for the contraction and dilation of the small blood vessels in your hands. It worked for me on one side but not the other. I'm not sure of the success rate, but if it doesn't work, it's just the same as before. The hand where it did work is warmer than the other but still can get attacks. Kind of depressing because the change is not huge if it does work, and you go through a surgery for nothing if it doesn't. Also--the side effect--excessive sweating on the side where it didn't work. That's because the nerve they cut is the same one responsible for perspiration. If some has excessive sweating, they cut that nerve and the sweating stops, so that happens to us too. No sweating if it works, but for me all my sweat is on one side of my body! Weird and uncomfy. The sympathectomy they do on the hand itself was not recommended for me, because my doctor says I have so few blood vessels in my hands I would never heal. Good luck in your search.
Karen

#9 LisaBulman

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Posted 15 September 2010 - 02:47 AM

Hi Sara,
See my new post about my recent surgery.

Hugs,
Lisa
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#10 omaeva

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Posted 22 September 2010 - 05:29 AM

Before you have surgery ask about trying fluoxetine. It helped me a lot with my Raynaud's, when I couldn't handle the calcium channel blockers, and the nitrobid ointment didn't help either. I wasn't comfortable with surgery, eventually after about a year, my ulcers started healing and have been rather stable.