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#1 Shelley Ensz

Shelley Ensz

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Posted 09 September 2010 - 04:01 AM

Welcome to Sclero Forums! We're delighted to have you join us, and hope we can help you find the comfort and information you need to deal with scleroderma or related illnesses.

We are really looking forward to having you join us as an active and supportive member, and we strongly encourage you to give lots of thoughtfulness and cyber hugs to other members, even if you don't have any specific advice for them. Remember, we always welcome links to pages in our sclero.org website, so browsing the main site is often a good way for you to try to answer questions posed by other members.

You have to start somewhere, sometime. So why not read the Sclero Forums Guidelines -- we have unusual guidelines because we serve a global audience and need to uphold high standards of excellence. This is not your usual "anything goes" sort of forum but that is also what makes us so cyber-special.

Then just post a message now -- right here, in the MAIN Forum -- it doesn't have to be long or complicated, in fact a short one is probably best to get the hang of things. Check back to see if it's been accepted or edited, and read the guidelines again if you don't understand why changes were made. Eventually you'll get the hang of posting messages ready for rapid review and approval.

We are glad you found us and eager to be of help, as we all tackle the challenges of scleroderma and related illnesses, together.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#2 Shelley Ensz

Shelley Ensz

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Posted 17 September 2010 - 02:05 PM

Welcome to all our new members who have joined us recently! We're delighted you found us and eager to provide the best service possible, to everyone.

To that aim, it would be very helpful for all of us to take a first (or second) look at the Sclero Forums Guidelines. In particular, one area where we could really use everyone's assistance is in making forum posts accessible to everyone.

For example, many people need to translate our posts into their native language, while others use Braille readers. These translations rely on perfect English, spelling, grammar, capitalization, and punctuation to make any sense at all. Our moderating team tries to edit messages, but sometimes the message queue is just too long or time is at a premium. Then we have to make difficult decisions as to whether to retype entire messages, or just delete the "word soup". Sometimes, unfortunately, the Delete button wins.

We can all help to get our messages quickly approved and accessible by all others, by making a special effort to do our best with punctuation, spelling and grammar. Our software does not automatically fix spacing, capitalizations, spelling, etc. So whenever we see our messages looking more presentable or in line with forum guidelines, it is because someone took the time to fix it for us, and, for that message at least, they kindly refrained from use of the Delete button.

I know that even I have made typos and errors that have been very graciously fixed by our wonderful moderating team. So I want to give them all a great pat on the back for a marvelous job, plus a little encouragement for us to make our posts more readily available to our world wide audience.

A special thanks to everyone for your dedicated and abiding help with tackling scleroderma throughout the world!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.