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Sclero and fibromyalgia


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#1 ste001

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Posted 16 September 2010 - 02:34 AM

I have scleroderma, Fibromyalgia...Raynaud's and osteoarthritis
I just wondered if anybody else has scleroderma and fibromyalgia and what your symptoms are?

#2 Jeannie McClelland

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Posted 16 September 2010 - 03:04 AM

Hi, welcome to the Forum! I'm sorry you needed to find us, but hopefully we can provide good information and some friendly support.

As it happens, I have fibromyalgia, systemic sclerosis sine scleroderma, Raynaud's, Sjogren's, osteoarthritis, and a seemingly ever-increasing number of other issues. Fibromyalgia was my first diagnosis and the others followed. My symptoms are pain, fatigue, breathlessness (I have pulmonary fibrosis and pulmonary hypertension) and some chest pain, hypersensitivity to temperature change, dry eyes/mouth/skin, multiple compression fractures in my spine, GI issues and so on.

Now, after reading that laundry list of woes, you need to remember that not everybody will have the same symptoms or at the same level of severity nor the same progression. Many people have quite a mild version of the disease and live a completely normal life.

Is there some question about your diagnosis and that's why you asked about symptoms? Many of us take a long time to get diagnosed because scleroderma symptoms can almost all be attributed to something else. Also, whenever a new symptom crops up, the doctors seem to swing like a pendulum from "No, that's nothing to do with scleroderma" to blaming everything on scleroderma! :lol: So I'd say the one symptom all of us have is periodic attacks of frustration!

Best wishes and once again, welcome,
Jeannie McClelland
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International Scleroderma Network

#3 Amanda Thorpe

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Posted 16 September 2010 - 08:14 AM

Hello and welcome to the forums! Scleroderma is enough to contend with let alone in conjunction with other illnesses! I know that fibromyalgia can be mild in some and severe in others, my mother has fibromyalgia and it affects her quite badly whereas my sister has it very mildly. Not to be outdone I have diffuse sclero with severe heart involvement (awaiting pacemaker and ICD), Raynaud's (mild), erythromelalgia and interstitial cystitis. Mind you there is a dear lady who posts on this forum who has 10, yes 10 auto immune diseases and manages to live a good quality life so anything is possible.

Take care and keep posting.
Amanda Thorpe
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#4 Patty Arche-Hueck

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Posted 19 September 2010 - 08:45 AM

I was diagnosed with fibromyalgia around 2006 and now it looks like I also have scleroderma. I am also new and asking questions. Keep in contact, hugs Patty