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Biomarker for Diffuse Scleroderma skin has been discovered!


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CT Myelogram test


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#21 Jeannie McClelland

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Posted 22 November 2010 - 04:24 AM

Hi Buttons,

What a nuisance! No wonder you are fed up - it's especially bad that the new date puts it so close to the holidays. Time to get yourself a swanky new dressing gown and pajamas and just lie on the sofa during the festivities. Let everyone take care of you and you just pretend to be Queen of Winter!

I'd hug you, Honey, but I imagine you'd rather have something to throw - here's a virtual teddy to toss. :temper-tantrum:
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#22 Joelf

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Posted 22 November 2010 - 06:03 AM

Hi Buttons

What an absolute pain!! There's nothing worse than gearing yourself up with a date in mind and then being let down so near the actual time. :angry:

I'm so sorry; it's also a shame that you've been treated like a human dartboard! Still there is a positive in that you do appear to have another definate date for your operation, which hopefully this time the hospital will be able to stick to.

As Jeannie's already sent you something to throw, I'll send you some :flowers: and a :emoticon-hug:

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#23 Sweet

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Posted 22 November 2010 - 09:50 AM

Awww Buttons, I'm so sorry. The waiting is the worst in most situations! I hope you can find out what the scoop is. Hang in there. :flowers:
Warm and gentle hugs,

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#24 Amanda Thorpe

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Posted 22 November 2010 - 09:55 AM

Hello Buttons

Foot?! What?!

I'm sorry you're surgery has been rescheduled, particularly as you want to get it out of the way. Maybe it's for your benefit? When Ma broke her hip she did so on a Thursday and they made her wait until Saturday to have her operation. It turned out they had done so to put her on the list of the most experienced surgeon.

Take care.
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#25 Patty Arche-Hueck

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Posted 23 November 2010 - 03:46 AM

Awww Buttons, I'm so sorry. The waiting is the worst in most situations! I hope you can relax, my friend, and do not worry about the festivities, just let everybody take care of you. I have to tell you I got that surgery in 2002. Of course I was healthy then (at least it looks like that). The surgery was on Dec 12 and my Doctor and I did very good,so good I am walking. So be positive, put yourself in a good place mentally, (always helps). Let us know so we can give you a soft hug. I'll keep you and your family in my thoughts, Patty
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#26 Shelley Ensz

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Posted 24 November 2010 - 12:22 PM

Hi Buttons,

I'm really sorry to hear your surgery has been postponed. I'm sure you'll be able to roll with the punches, but that is definitely a punch!

There is something to our own psychological timetable for surgeries. It's like there is a certain amount of bracing we do, and somehow we leverage it out over the allotted time. Then when things change (either sooner or later) it feels like more of an adjustment than the surgery itself. Like, the hardest thing regarding my husband's lung transplant wasn't the testing, the surgery, the drugs, the aftercare; the thing that took the most energy for us was planning for the unknown, as we never knew what hour of the day or night it would be. So you feel braced, but for when? And moving things out further means even more of a stretch when we need to calm ourselves, brace ourselves, keep our positive attitude in high gear and cope with the problematic symptoms, too.

Well, not much you can do about it anyway, is there? So you might as well dub the extra wait your "party time" and see how much extra fun you can squeeze into those extra days pre-surgery. What can you plan or do before then, that you couldn't otherwise? You will sure have a little more time to prepare for the holidays, as I'll bet they are otherwise rather off the radar for you, with your upcoming recovery.

Yes, it's a drag! But we'll be here, dragging right along with you.

:emoticon-hug:
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#27 Buttons

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Posted 24 November 2010 - 09:45 PM

The waiting is the worst thing and I suppose we should all be used it with all the tests etc that we have to deal but it doesn't get any easier. At least I won't miss too many of my Tai Chi sessions before the holidays, it does help with my movement and helps me too relax a little which is what I need at the moment.

I am feeling a little better, as you say Shelley you just have to pick yourself up and get on with things. I am going to visit a few old friends and some family who live quite a distance from me. I am pretty well up with all the holiday things so for once I am ahead of myself.

I also managed to speak to the consultant yesterday and he was very kind and answered my long list of questions I'd prepared (all written down of course) which has helped somewhat.

Thanks for the kind words, it's good to know you have others support.

Buttons

#28 debonair susie

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Posted 26 November 2010 - 06:09 AM

Oh Buttons, I'm also sorry to read that things are delayed, but so glad you were able to visit with the consultant, which must have "helped" calm you a bit.

Anticipation really seems to take a lot of energy from those of us with chronic illness. I'm so glad to see you practice Tai Chi, which must really help "calm" your body.

I will be keeping you in my thoughts as you await your surgery.
Thank you for keeping us posted!

In the meantime, some {{{{Soft Hugs}}}} to use liberally ;)
Special Hugs,

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#29 Snowbird

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Posted 26 November 2010 - 07:32 AM

Aawww Buttons, Sorry to hear you were a pin cushion per se, sure glad that's over for you now!

I agree....just try the best you can to put yourself in the right frame of mind and everything else will follow as it should.

As for the festivities, you'll hopefully be ready with a full appetite to eat all the goodies your family and friends make for you (not really so bad if there is no cooking for you to do now, is it?). Especially good that you are already a little ahead yourself for the holidays too. Keep us updated.
Sending good wishes your way!

#30 NorthStarHope

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Posted 26 November 2010 - 08:21 AM

Hi Buttons

I'm so sorry you had to go through so much lately, as you probably know my sister has been through so much lately also. The best we can do is keep our chin up and always hope for the best!! Plenty of hugs for you! :emoticon-hug: :emoticon-hug: :emoticon-hug:
Sincerely,

northstarhope*

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#31 enjoytheride

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Posted 26 November 2010 - 11:27 AM

It is hard to nerve yourself up for something like this- it doesn't help to have to plan again. It's nice that it allows you some time to visit with your family and friends.

But you can ring in the new year with an improved you- no New Year resolutions needed there.

I hope it is all smooth and uneventful from now on.