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My Hospital Appointment

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#1 Louxx


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Posted 16 February 2007 - 01:54 AM

I'll keep this short.

I was a bit annoyed yesterday because I waited over an hour for my appointment which should have been at 10:45, I didn't get seen until after 12!
Then, when I went into the room, it was like my doctor was rushing me. I was just told that my blood tests revealed that I had nothing wrong with me internally. and then they said they'd ring me about my biopsy results.
Then my doctor said that when they find out the biopsy results, they'l think about whether or not I'll be getting light treatment (i think its called ultra violet light treatment-but I'm not sure). I was told that the light treatment will take up a lot of my time, I will have to go to the hospital about 3 times a week for it.

if anyone could let me know anything about this light treatment, please fill me in.

Oh and I also heard my doctor saying to another doctor "she has morphea"
i always thought it was called linear scleroderma... so that confused me a little..

#2 Heidi


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Posted 16 February 2007 - 04:49 AM

Hi Louise,

Thanks for the update. I am sorry your appointment was so frustrating. It seems like they could have just given you your blood results in a letter or phone call since everything was normal. GRRR!

Here is a link that will take you to some articles that talk about using phototherapy for the treatment of localized (morphea and linear) scleroderma.

You also might want to look at the information on linearand morphea scleroderma (they are both forms of localized scleroderma) and maybe even look at the pictures here since you said you thought you had linear but the doctor said morphea.

Please do keep us posted when you get the results of your biopsy.

Warm wishes,


#3 janey


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Posted 16 February 2007 - 05:08 AM

Sorry about your frustrating visit. Like we don't have enough to deal with. Please check out the links that Heidi provided. I think they'll give you the information you're looking for. Hopefully, your next appointment will go better.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 Sweet


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Posted 16 February 2007 - 06:57 AM

Hey Louise,

I'm really sorry that you felt so rushed by your provider. I hate that! I'm lucky enough that my rheumatologist actually spends quite a bit of time talking with me, although I do have to say that most of the time he's doing the talking and it isn't necessarily what I want to talk about!

Heidi gave you some great links, I hope they help. Good luck love.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)