Jump to content


Did you know that exercise increases inflammation in systemic sclerosis?


Photo

Arm issues and steroid shot


  • Please log in to reply
6 replies to this topic

#1 Lynnie

Lynnie

    Silver Member

  • Members
  • PipPipPipPip
  • 173 posts
  • Location:UK HULL EAST YORKSHIRE

Posted 21 September 2010 - 12:16 PM

Hi Everyone,

Well, I attended the hospital yesterday as planned. It was a long 6 month follow-up!

Well it was the usual run of the mill general questions and requests. Sent off for a heart scan and lung function routine to check that the scleroderma isn't attacking them...yet.

I mentioned that I'm good most of the time but how troublesome my arm and elbow have been and landed up with a hefty dose of a steroid drug in the rear! I go back in 8 months if all's well with the tests. I do sense that doctors in general play at taking care of us and sense they feel helpless to a certain degree that they can only monitor our condition and deal with issues as they arise. I personally always come away from them grateful that they haven't found anymore problems but incredibly sad they are unable to give me something to grab hold!

If I run into trouble I can phone the secretary and the rheumatologist will see me within a few days. Suppose I can't complain at that.

I get so weary of it all, I do. And I know some of you suffer a whole lot more with things than I do. That's small comfort when it's you at home, in your living room, on your own thinking about yourself. Moan over, I'll be back on form tomorrow. I just hope the steroid injection works and gives me a bit of relief. I was wondering how often can we have them? Have they worked for any of you?

Warm hugs to all,
Lynn :emoticon-hug: :closedeyes:

#2 erika

erika

    Silver Member

  • Members
  • PipPipPipPip
  • 106 posts

Posted 21 September 2010 - 07:24 PM

Hi Lynn,

I don't know about steroid injections but I would like to join your weary feeling. With this illness I feel like Don Quixote fighting with windmills.

It takes time and effort to achieve -nothing.

But tomorrow is another day, as Scarlet O'Hara said.

Looking forward to that!

Erika

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 26 September 2010 - 06:33 AM

Come on ladies...it's not that bad...not yet anyway! You just have to remember that we're living in the weird 'n' wacky world of sclero now, think of it as an alternative reality or universe even. Other peoples' ordinary is our extraordinary because of everything we have to endure. How we do it I don't know but we certainly do, today, tomorrow and the day after! :happy-day:

Once upon a time I had a career, a social life, worked out regularly and now I am an overweight lady of leisure getting out of breath climbing the stairs breaking in my new pacemaker defibrillator! Yesterday I hosted the Essex group of the UK Scleroderma Society and spent the day thinking how wonderful it was to spend time with such amazing people. A new lady came for the first time and it was a real priviledge to get to know her as well as to enjoy the company of old friends. I'm pretty sure none of us would choose to have scleroderma but have it we do so let's make the most of it. :happy-day:

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 26 September 2010 - 12:40 PM

Hi Ladies!

I can relate to the feeling of weariness, from time to time....it's alot to keep up with!

Yet, Amanda...you are truly an inspiration to me and (I'm sure),to others!
I just wanted to present you with this bouquet :flowers: and let you know how happy I am that you are getting used to your pacemaker! I hope things continue to improve for you, my friend.
How wonderful that you hosted a Scleroderma group and that it was so good to see friends and meet new ones!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 erika

erika

    Silver Member

  • Members
  • PipPipPipPip
  • 106 posts

Posted 26 September 2010 - 09:21 PM

Girls, thanks for comfort, it is nice to have someone to complain to (I can not do that at home). I have wiped the tears of and feel much better now. This low feeling happens from time to time even to the healthiest people. It is not strange that it happens to us.
TAke care
Erika

#6 Vanessa

Vanessa

    Senior Bronze Member

  • Members
  • PipPipPip
  • 94 posts
  • Location:Teddington Middx UK

Posted 26 September 2010 - 10:56 PM

I would like to add to that too

I reckon you are a very special gal Amanda,and you certainly inspire me.

#7 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 27 September 2010 - 06:56 AM

Ladies as I always say the best people have scleroderma and we're living proof!! :thank-you:
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)