Posted 22 September 2010 - 07:35 AM
Posted 22 September 2010 - 10:55 AM
I had them so bad that I actually thought I had a heart attack. It was not uncommon for me to walk slightly bent over for days. They gradually got better with the hydroxychloroquine I'm taking. Also, I started taking famotidine at prescription strength and that helped too.
I never knew what was caused it but I do know if I missed the famotidine, they come back so maybe they are due to GERD??
Taking small meals more frequently helped too.
There was about 4 years of this before I got the attention of a doctor who was willing to try to help- so if they don't resolve for you soon, checking them out with a gastroenterologist would be an option. Even if they can't tell what's wrong, there should be things to try.
I hope that you get relief soon. (((hugs)))
Posted 23 September 2010 - 11:03 AM
I would have thought that some tests would have been arranged to find out the cause of the cramps, if your rheumatologists didn't know the cause they should have tried to find it out. You may wish to consider seeing a scleroderma expert?
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Posted 25 September 2010 - 07:24 AM