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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 whirlway

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Posted 16 February 2007 - 02:28 AM

Has anyone out there experienced this kind of thing? The outer part of both hands and fingers feel numb. And then last night I woke up in the middle of the night and both knees were numb. I could get up and walk around and I didn't get that tingly feeling, like when a limb goes to sleep and then is coming out of it. I think I could have stuck pins in my knees and not felt it. The hand thing bothers me the most, due to the fact that it has happened more than once. Should I call one of my doctors and which one, the primary care physician or rheumatologist, who I just saw last week.
Sometimes I really hate this stuff. I don't have time to be getting new 'symptoms'.
~whirlway


#2 Heidi

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Posted 16 February 2007 - 04:44 AM

Hi Whirlway,

I get numbness in my hands and fingers quite frequently (and have for years). In fact, as I was sitting here reading your post, both hands went completely numb. Now, they feel fine again. I notice it a lot in the mornings when my hands are more swollen and at night I notice it when I am in bed, sitting and reading a book...sometimes they get so numb I can't hold the book. I also notice it sometimes when I am trying to shampoo my hair...they go totally numb. I have never had the sensations in my knees, however.

Warm wishes,
Heidi

#3 Sweet

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Posted 16 February 2007 - 07:01 AM

Hi Whirlway,

I have thoracic outlet syndrome which perfectly describes what you are talking about with your arms. Not to say that is what your issue is, but thought Id throw that out there. The knee numbness is a bit odd, not sure I've heard anyone talk about that before. I would for SURE call your doctor and if it were me I would probably call Dr. Craig first, leave a message with Debbie and as if this is something they would like to handle or do they want you to call your primary care physician.

Please keep us posted.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Patty1

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Posted 16 February 2007 - 07:17 AM

Hi Whirlaway
I get those sensations in my hands and feet, but not my knees! I was tested for Ulnar Nerve entrapment last month, which fortunately showed no entrapment. So I guess we (the Rhematologist) and I are watching to see if it gets worse. But if it is like mine, it can be very disconcerting, and a little scarry like when you are trying to walk...my feet numbness is probably the raynaud's. I feel your frustration! It seems like I am on the phone with my doctor alot this winter. As a matter of fact, I just got off the phone with her,, trying to find out about the bone scan scheduling she has ordered... someone lost my paperwork! If it continues, I would definitely contact your doctor..
Warm Wishes,
Patty