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Just call me Jamie...I'm bionic now!

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#1 Amanda Thorpe

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Posted 23 September 2010 - 11:37 AM

Hello All

So Monday I had my bi-ventricular inter cardioverter defibrillator fitted to try and repair the damage done by the myocardial fibrosis and subsequent heart failure. It looked like a huge watch battery and has 3 wires, one for each side of the heart which is the bi-ventricular part and one wire which is the defibrillator. The procedure took 3 hours, longer than the expected 2 and I don't know why. I was probably told but have no recollection of anything that went on after I left the cath lab until I was back on the cardiac care ward. I do know they gave me a lot of pain medication during the procedure which was painful at times and then of course they had to render me unconcious so they could test the defibrillator. I am pleased to say the everyone from the nursing staff to the porters were excellent as of course were the doctors.

Tuesday I had to have a chest x-ray to make sure the pacemaker was where it should be and later in the day they tested it which was weird because the tech was pressing buttons on a keyboard which made my heartrate change. So far so good and I have to avoid raising my left arm above my head for 4 weeks so that tissue can grow around the wires in the heart to keep them in place.

Tomorrow the bandage comes off and the stiches come out Monday. I am expecting a mega bruise because I initially felt like I'd been stepped on by an elephant and I can still only sleep on my back. If I don't have a spectacular bruise I will be immensely disappointed because I am in competition with Ma. She broke her hip 3 weeks ago and keeps asking me if I want to see her scar...NO...you weirdo...but hey lets look at mine!! :emoticons-yes:

Now it's a case of wait and see how it goes and I am expecting good things people! Already I am sure the breathlessness is better and who knows maybe it will eventually go altogther. I know that it could take up to a year before I get the full benefit and that 30% of people never feel any better but I have no intention of being one of the 30%!

Take care.
Amanda Thorpe
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#2 Buttons


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Posted 23 September 2010 - 11:28 PM

Hi Amanda,

Glad to hear it went OK apart from it taking a bit longer and hope that you soon feel better and that it is successful for you.

Look after yourself.

Best Wishes



#3 Sheryl


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Posted 23 September 2010 - 11:38 PM

Amanda, so happy to hear that the surgery went well and you are already feeling the effects from it. You have been amazingly strong with all that you have to handle. I sure hope you are in the 70% group and you do exceedingly well.
Strength and Warmth,

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#4 lizzie


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Posted 24 September 2010 - 10:09 AM

Hi Amanda, glad all went well , and heres hoping for a bruise to beat all bruises. You get the prize for the most difficult to remember and pronounce name for a procedure.


#5 Deb1million


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Posted 24 September 2010 - 10:38 AM

Well done, Amanda. I hope you rest and recover well. :flowers:

see you on saturday

best wishes

#6 janey


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Posted 24 September 2010 - 01:21 PM

I'm thrilled that it went well!!!!! I'm confident that you will be one of those that definitely feels the difference. I was. Once the drugs wore off and the hubby took me for a walk down the hallway, I felt a HUGE difference. Couldn't live without it. The hubby calls me his little borg.

You're going to do great!
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#7 Joelf


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Posted 25 September 2010 - 06:46 AM

Great news that you've now got your defibrillator fitted, Amanda; there'll be no holding you now!!! :emoticons-yes:

My best friend had one fitted 2 years ago & hasn't looked back since. She has a small & barely noticable scar (sorry to disappoint you!! :lol:) The only problem has been when she's gone through scanners such as they have in airports; she tends to light the place up like a Belisha beacon & sets all the alarms off.....at least they know she's there!!! ;) :lol:

So glad it all went well. :VeryHappy:
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