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Meldie 73 new to forum!

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#1 meldie73



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Posted 24 September 2010 - 09:17 AM

Hi, I am new to this site and to chat rooms. I have Systemic Scleroderma and have had it since 2004- went away on honeymoon fit and healthy and returned to England with a virus which triggered this disease. However, I now have two great kids, even though the doctors advised me against getting pregnant. Life is good! However, I do have crooked hands, Raynaud's, digital ulcers, esophagus trouble, very tight skin and a comical lack of stretch. I would be very interested in meeting others in North West with this condition and would be happy to be a coordinator for Liverpool.

#2 Amanda Thorpe

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Posted 26 September 2010 - 06:56 AM

Hello Meldie73

Welcome to the forum! I'm the local group coordinator for the Scleroderma Society UK in Essex, we met yesterday as it happens and it was great fun as always.

It's great that you want to set up a local group and you can contact the Scleroderma Society local group coordinator Liz Holloway for details. Although you don't have to be a member of the Scleroderma Society to join a local group you do need to be a member to host one so that we can give you the details of other members in your area. Contact Liz and let us know how you get on!

Take care and keep posting!
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#3 Joelf


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Posted 26 September 2010 - 08:19 AM

Hi Meldi73

Welcome to the forum!! :bye:

I also have Systemic Limited Sclero & am the joint local contact for West Sussex. I've met some lovely people through the Scleroderma Society & I'm sure Liz will welcome you with open arms if you want to start a local group.

I usually try to participate in the Wednesday chat room although my slow typing skills mean that I'm often about 3 conversations behind everyone else!!! :lol: :lol: However I very much enjoy it!! ;)

I look forward to reading your posts.
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#4 lizzy


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Posted 31 October 2010 - 05:15 AM

hi there meldie, I just joined I live in the north west not far from liverpool, I have bent and swollen hands calcinocis joint pain stiffness heartburn and reflux although mild but getting wores now, I was dianosed in 2005 and 41 years old but luckily I'd had all my children, I found the whole thing quite lonely and depressing, but learned to get on with it and not think too much about it,,
hope you're well
love & hugs
liz xx